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慢性阻塞性肺疾病患者的生活经历:一项现象学研究。

The Lived Experiences of People With Chronic Obstructive Pulmonary Disease: A Phenomenological Study.

作者信息

Chang Yi-Ya, Dai Yu-Tzu, Chien Nai-Hui, Chan Hui-Ya

机构信息

Lecturer, Department of Nursing, Chang Gung University of Science and Technology, Taoyuan City, Taiwan.

Doctoral Candidate, School of Nursing, College of Medicine, National Taiwan University, Taipei City, Taiwan.

出版信息

J Nurs Scholarsh. 2016 Sep;48(5):466-71. doi: 10.1111/jnu.12230. Epub 2016 Jun 29.

Abstract

PURPOSE

This study explored the lived experiences of people with chronic obstructive pulmonary disease (COPD) following hospitalization for acute exacerbation or pneumonia.

DESIGN AND METHOD

A phenomenological approach was adopted to collect data through semistructured interviews. Fourteen participants were recruited from a medical center in northern Taiwan. Data were collected from January 2013 to January 2014. Giorgi's phenomenological methodology was adopted to analyze the interview content.

FINDINGS

Three phenomenological themes emerged: trapped in an invisible cage, torments in the winter, and striving for wellness.

CONCLUSIONS

This study sought to elucidate the lived experiences of people with COPD, who perceived themselves as feeling an overwhelming sense of confinement. The interviewees displayed positive attitudes, indicating that people with COPD are willing to cope with their disease. Health practitioners should focus on educating people with COPD about their needs, encouraging them to be more positive, and assisting them in engaging in self-management.

CLINICAL RELEVANCE

People with COPD can cope with the disease and seek alternative methods to improve their health. These positive attitudes could be used to encourage self-management in the future.

摘要

目的

本研究探讨慢性阻塞性肺疾病(COPD)患者在因急性加重或肺炎住院后的生活经历。

设计与方法

采用现象学方法,通过半结构化访谈收集数据。从台湾北部的一家医疗中心招募了14名参与者。数据收集时间为2013年1月至2014年1月。采用 Giorgi 的现象学方法分析访谈内容。

结果

出现了三个现象学主题:困于无形之笼、冬日之苦、追求健康。

结论

本研究旨在阐明 COPD 患者的生活经历,他们感觉自己被一种压倒性的禁锢感所笼罩。受访者表现出积极的态度,表明 COPD 患者愿意应对自己的疾病。医护人员应专注于教育 COPD 患者了解自身需求,鼓励他们更加积极,并协助他们进行自我管理。

临床意义

COPD 患者能够应对疾病并寻求改善健康的替代方法。这些积极态度可用于未来鼓励自我管理。

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