Chen Bin, Peng Yin, Zhou Lin, Chai Chengliang, Yeh Hui-Chi, Chen Songhua, Wang Fei, Zhang Mingwu, He Tieniu, Wang Xiaomeng
Department of Tuberculosis Control and Prevention, Zhejiang Provincial Center for Disease Control and Prevention, Binjiang District, Hangzhou, People's Republic of China.
Politics & International Relations, Social Sciences, University of Southampton, Southampton, UK.
Patient Prefer Adherence. 2016 Jun 13;10:1063-70. doi: 10.2147/PPA.S105655. eCollection 2016.
The objective of this study is to assess the social support received by patients diagnosed with multidrug-resistant tuberculosis (MDR-TB) in Zhejiang Province, People's Republic of China and the factors that may have influenced it.
A total of 220 MDR-TB patients participated in the questionnaire-based survey, and the data from 212 valid questionnaires were analyzed. The respondents reported their sociodemographic status, disease features, and attitudes toward the disease. The social support rating scale was used to measure the patients' social support scores. An Independent Samples t-test, one-way analysis of variance, and a multiple linear regression model were used to analyze the related factors for the social support scores.
The average social support score of each MDR-TB patient was 32.56±7.86. Participants who were single, widowed or divorced, retired, and had fewer family members and lower family income were found to have lower social support scores. Participants unwilling to disclose their disease tended to have less social support (31.59<34.23, P=0.010). Participants who perceived great help from health care workers reported higher social support rating scale scores than those who perceived no help (35.36.29.89, P=0.014).
MDR-TB patients in Zhejiang Province were shown to have a low level of social support. Patients who were not married, had smaller families, and lower family income received less social support, suggesting that family harmony could be an important source of social support. Patients' self-isolation may contribute to a decrease in the amount of support they receive from their surroundings. Health care organizations need to offer more social support to MDR-TB patients.
本研究旨在评估中华人民共和国浙江省确诊为耐多药结核病(MDR-TB)的患者所获得的社会支持及其可能的影响因素。
共有220例耐多药结核病患者参与了问卷调查,并对212份有效问卷的数据进行了分析。受访者报告了他们的社会人口学状况、疾病特征以及对疾病的态度。采用社会支持评定量表来测量患者的社会支持得分。使用独立样本t检验、单因素方差分析和多元线性回归模型来分析社会支持得分的相关因素。
每位耐多药结核病患者的社会支持平均得分为32.56±7.86。发现单身、丧偶或离异、退休、家庭成员较少且家庭收入较低的参与者社会支持得分较低。不愿透露病情的参与者往往获得的社会支持较少(31.59<34.23,P=0.010)。认为医护人员给予很大帮助的参与者的社会支持评定量表得分高于认为没有帮助的参与者(35.36>29.89,P=0.014)。
浙江省耐多药结核病患者的社会支持水平较低。未婚、家庭规模较小且家庭收入较低的患者获得的社会支持较少,这表明家庭和睦可能是社会支持的重要来源。患者的自我隔离可能导致他们从周围环境获得的支持减少。医疗机构需要为耐多药结核病患者提供更多的社会支持。