Weerasinghe Swarna, Maddalena Victor
a Community Health and Epidemiology, Dalhousie University, Centre for Clinical Research , Halifax , Nova Scotia , Canada.
b Faculty of Medicine, Division of Community Health and Humanities , Memorial University of Newfoundland , St. John's , Newfoundland and Labrador, Canada.
Soc Work Public Health. 2016 Nov-Dec;31(7):665-677. doi: 10.1080/19371918.2015.1137521. Epub 2016 Jun 30.
In the present study, we explored family caregivers' experiences in providing end-of-life care for terminally ill South Asian immigrants. We employed qualitative methods and. in-depth interviews were conducted with seven family caregivers living in Nova Scotia, Canada. Interview data were validated, coded and organized for themes. Three major themes identified in the data illustrated (a) how South Asian caregivers experienced clashes between biomedical and ethno-cultural realms of care that led to cultural insensitivity, (b) how family members acted as mediators, and (c) how communication issues that challenged cultural sensitivity were handled. Findings provide directions for culturally sensitive end-of-life care planning.
在本研究中,我们探讨了家庭照顾者为身患绝症的南亚移民提供临终关怀的经历。我们采用了定性研究方法,并对居住在加拿大新斯科舍省的七位家庭照顾者进行了深入访谈。访谈数据经过验证、编码并整理成主题。数据中确定的三个主要主题表明:(a) 南亚照顾者如何经历了生物医学护理领域与民族文化护理领域之间的冲突,从而导致文化上的麻木不仁;(b) 家庭成员如何充当调解人;(c) 如何处理挑战文化敏感性的沟通问题。研究结果为具有文化敏感性的临终关怀规划提供了指导方向。