Brown Elizabeth A
Yale J Health Policy Law Ethics. 2016 Winter;16(1):1-49.
Employers are collecting and using their employees' health data, mined from wearable fitness devices and health apps, in new, profitable, and barely regulated ways. The importance of protecting employee health and fitness data will grow exponentially in the future. This is the moment for a robust discussion of how law can better protect employees from the potential misuse of their health data. While scholars have just begun to examine the problem of health data privacy, this Article contributes to the academic literature in three important ways. First, it analyzes the convergence of three trends resulting in an unprecedented growth of health-related data: the Internet of Things, the Quantified Self movement, and the Rise of Health Platforms. Second, it describes the insufficiencies of specific data privacy laws and federal agency actions in the context of protecting employee health data from employer misuse. Finally, it provides two detailed and workable solutions for remedying the current lack of protection of employee health data that will realign employer use with reasonable expectations of health and fitness privacy. The Article proceeds in four Parts. Part I describes the growth of self-monitoring apps, devices, and other sensor-enabled technology that can monitor a wide range of data related to an employee's health and fitness and the relationship of this growth to both the Quantified Self movement and the Internet of Things. Part II explains the increasing use of employee monitoring through a wide range of sensors, including wearable devices, and the potential uses of that health and fitness data. Part III explores the various regulations and agency actions that might protect employees from the potential misuse of their health and fitness data and the shortcomings of each. Part IV proposes two specific measures that would help ameliorate the ineffective legal protections that currently exist in this context. In order to improve employee notice of and control over the disclosure of their health data, I recommend the adoption of a mandatory privacy labeling law for health-related devices and apps to be enacted and enforced by the Federal Trade Commission (FTC). As a complementary measure, I also recommend that be amended so that its protections extend to the health-related data that employers may acquire about their employees. The Article concludes with suggestions for additional scholarly discussion.
雇主们正在以全新的、有利可图且几乎不受监管的方式收集和使用从可穿戴健身设备及健康应用程序中挖掘出的员工健康数据。未来,保护员工健康与健身数据的重要性将呈指数级增长。当下正是展开一场关于法律如何能更好地保护员工免受其健康数据潜在滥用之害的深入讨论的时机。虽然学者们才刚刚开始研究健康数据隐私问题,但本文在三个重要方面对学术文献有所贡献。首先,它分析了导致与健康相关数据空前增长的三种趋势的融合:物联网、自我量化运动以及健康平台的兴起。其次,它描述了在保护员工健康数据不被雇主滥用的背景下,特定数据隐私法及联邦机构行动的不足之处。最后,它提供了两个详细且可行的解决方案,以弥补当前对员工健康数据保护的缺失,使雇主的使用与对健康和健身隐私的合理期望重新契合。本文分为四个部分。第一部分描述了自我监测应用程序、设备及其他具备传感器功能的技术的发展,这些技术能够监测与员工健康和健身相关的数据范围,以及这种发展与自我量化运动和物联网的关系。第二部分解释了通过包括可穿戴设备在内的各种传感器对员工进行监测的日益增加的使用情况,以及这些健康和健身数据的潜在用途。第三部分探讨了可能保护员工免受其健康和健身数据潜在滥用之害的各种法规及机构行动,以及每一项的不足之处。第四部分提出了两项具体措施,这将有助于改善目前在此背景下存在的无效法律保护。为了提高员工对其健康数据披露的知晓度和控制权,我建议通过一项由联邦贸易委员会(FTC)制定和执行的针对与健康相关设备和应用程序的强制性隐私标签法。作为一项补充措施,我还建议对[此处原文缺失相关法律名称]进行修订,使其保护范围扩展至雇主可能获取的有关其员工的与健康相关的数据。本文最后提出了进一步学术讨论的建议。