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作为人类:一项定性访谈研究,探讨为何针对慢性病管理的远程医疗干预效果有限。

Being Human: A Qualitative Interview Study Exploring Why a Telehealth Intervention for Management of Chronic Conditions Had a Modest Effect.

作者信息

O'Cathain Alicia, Drabble Sarah J, Foster Alexis, Horspool Kimberley, Edwards Louisa, Thomas Clare, Salisbury Chris

机构信息

Medical Care Research Unit, School of Health and Related Research, University of Sheffield, Sheffield, United Kingdom.

出版信息

J Med Internet Res. 2016 Jun 30;18(6):e163. doi: 10.2196/jmir.5879.

Abstract

BACKGROUND

Evidence of benefit for telehealth for chronic conditions is mixed. Two linked randomized controlled trials tested the Healthlines Service for 2 chronic conditions: depression and high risk of cardiovascular disease (CVD). This new telehealth service consisted of regular telephone calls from nonclinical, trained health advisers who followed standardized scripts generated by interactive software. Advisors facilitated self-management by supporting participants to use Web-based resources and helped to optimize medication, improve treatment adherence, and encourage healthier lifestyles. Participants were recruited from primary care. The trials identified moderate (for depression) or partial (for CVD risk) effectiveness of the Healthlines Service.

OBJECTIVE

An embedded qualitative study was undertaken to help explain the results of the 2 trials by exploring mechanisms of action, context, and implementation of the intervention.

METHODS

Qualitative interview study of 21 staff providing usual health care or involved in the intervention and 24 patients receiving the intervention.

RESULTS

Interviewees described improved outcomes in some patients, which they attributed to the intervention, describing how components of the model on which the intervention was based helped to achieve benefits. Implementation of the intervention occurred largely as planned. However, contextual issues in patients' lives and some problems with implementation may have reduced the size of effect of the intervention. For depression, patients' lives and preferences affected engagement with the intervention: these largely working-age patients had busy and complex lives, which affected their ability to engage, and some patients preferred a therapist-based approach to the cognitive behavioral therapy on offer. For CVD risk, patients' motivations adversely affected the intervention whereby some patients joined the trial for general health improvement or from altruism, rather than motivation to make lifestyle changes to address their specific risk factors. Implementation was not optimal in the early part of the CVD risk trial owing to technical difficulties and the need to adapt the intervention for use in practice. For both conditions, enthusiastic and motivated staff offering continuity of intervention delivery tailored to individual patients' needs were identified as important for patient engagement with telehealth; this was not delivered consistently, particularly in the early stages of the trials. Finally, there was a lack of active engagement from primary care.

CONCLUSIONS

The conceptual model was supported and could be used to develop further telehealth interventions for chronic conditions. It may be possible to increase the effectiveness of this, and similar interventions, by attending to the human as well as the technical aspects of telehealth: offering it to patients actively wanting the intervention, ensuring continuity of delivery by enthusiastic and motivated staff, and encouraging active engagement from primary care staff.

摘要

背景

远程医疗对慢性病有益的证据并不一致。两项相关的随机对照试验对健康热线服务在两种慢性病中的效果进行了测试:抑郁症和心血管疾病(CVD)高风险。这项新的远程医疗服务包括由经过培训的非临床健康顾问定期打电话,这些顾问遵循交互式软件生成的标准化脚本。顾问通过支持参与者使用基于网络的资源来促进自我管理,并帮助优化药物治疗、提高治疗依从性以及鼓励更健康的生活方式。参与者从初级保健机构招募。试验确定了健康热线服务具有中度(针对抑郁症)或部分(针对心血管疾病风险)有效性。

目的

开展一项嵌入式定性研究,通过探索干预措施的作用机制、背景和实施情况来帮助解释这两项试验的结果。

方法

对21名提供常规医疗服务或参与干预的工作人员以及24名接受干预的患者进行定性访谈研究。

结果

受访者描述了部分患者的病情有所改善,他们将其归因于干预措施,并阐述了干预措施所基于的模式的各个组成部分是如何帮助实现益处的。干预措施的实施基本按计划进行。然而,患者生活中的背景问题以及实施过程中的一些问题可能降低了干预措施的效果。对于抑郁症,患者的生活和偏好影响了他们对干预措施的参与度:这些大多处于工作年龄的患者生活忙碌且复杂,这影响了他们参与的能力,而且一些患者更喜欢基于治疗师的方法而非所提供的认知行为疗法。对于心血管疾病风险,患者的动机对干预措施产生了不利影响,一些患者参加试验是为了整体健康改善或出于利他主义,而不是出于改变生活方式以解决其特定风险因素的动机。由于技术困难以及需要对干预措施进行调整以用于实际,在心血管疾病风险试验的早期阶段实施情况并非最佳。对于这两种疾病,热情且积极主动的工作人员根据个体患者的需求量身提供持续的干预服务被认为对患者参与远程医疗很重要;但这一点并未始终得到落实,尤其是在试验的早期阶段。最后,初级保健机构缺乏积极参与。

结论

该概念模型得到了支持,可用于开发针对慢性病的进一步远程医疗干预措施。通过关注远程医疗的人文和技术方面,有可能提高这项干预措施以及类似干预措施的有效性:将其提供给积极希望接受干预的患者,确保由热情且积极主动的工作人员提供持续服务,并鼓励初级保健人员积极参与。

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