Egan Richard, Wood Sarah, MacLeod Rod, Walker Robert
Preventive and Social Medicine, Dunedin School of Medicine, University of Otago, PO Box 56, Dunedin 9054, New Zealand.
Department of Preventive & Social Medicine, Dunedin School of Medicine, University of Otago, Dunedin 9054, New Zealand.
Healthcare (Basel). 2015 Nov 16;3(4):1174-93. doi: 10.3390/healthcare3041174.
Chronic kidney disease is marked by a reduced life expectancy and a high symptom burden. For those who reach end-stage renal disease, the prognosis is poor, and this combined with the growing prevalence of the disease necessitates supportive and palliative care programmes that will address people's psychosocial, cultural and spiritual needs. While there is variation between countries, research reveals that many renal specialist nurses and doctors are reluctant to address spirituality, initiate end-of-life conversations or implement conservative treatment plans early. Yet, other studies indicate that the provision of palliative care services, which includes the spiritual dimension, can reduce symptom burden, assist patients in making advanced directives/plans and improve health-related quality of life. This review brings together the current literature related to renal supportive care and spirituality under the following sections and themes. The introduction and background sections situate spirituality in both healthcare generally and chronic kidney disease. Gaps in the provision of chronic kidney disease spiritual care are then considered, followed by a discussion of the palliative care model related to chronic kidney disease and spirituality. Chronic kidney disease spiritual needs and care approaches are discussed with reference to advanced care planning, hope, grief and relationships. A particular focus on quality of life is developed, with spirituality named as a key dimension. Finally, further challenges, such as culture, training and limitations, are explicated.
慢性肾脏病的特点是预期寿命缩短和症状负担沉重。对于那些进入终末期肾病的患者来说,预后很差,再加上该疾病患病率不断上升,因此需要有支持性和姑息治疗项目来满足人们的心理、文化和精神需求。尽管各国情况有所不同,但研究表明,许多肾脏专科护士和医生都不愿涉及精神层面的问题、开启临终谈话或尽早实施保守治疗方案。然而,其他研究表明,提供包括精神层面在内的姑息治疗服务,可以减轻症状负担,帮助患者制定预立医疗指示/计划,并提高与健康相关生活质量。本综述将当前与肾脏支持性护理和精神层面相关的文献汇总在以下章节和主题中。引言和背景部分在一般医疗保健以及慢性肾脏病的范畴内阐述了精神层面的问题。接着会探讨慢性肾脏病精神护理提供方面的差距,随后讨论与慢性肾脏病和精神层面相关的姑息治疗模式。将参照临终关怀规划、希望、悲伤和人际关系来讨论慢性肾脏病的精神需求和护理方法。特别关注生活质量,并将精神层面视为一个关键维度。最后,阐述了文化、培训和局限性等进一步的挑战。