Petricone-Westwood Danielle, Lebel Sophie
School of Psychology, University of Ottawa, 136 Jean Jacques Lussier PVT, Room 4016, Ottawa, Ontario K1N 6N5, Canada.
School of Psychology, University of Ottawa, 136 Jean Jacques Lussier PVT, Room 4016, Ottawa, Ontario K1N 6N5, Canada.
Gynecol Oncol. 2016 Oct;143(1):184-192. doi: 10.1016/j.ygyno.2016.07.007. Epub 2016 Jul 25.
Ovarian cancer differs from many other cancer diagnoses due to its late diagnosis and high rates and frequencies of recurrences. The physical and psychosocial wellbeing of patients are well documented in the literature, however limited research exists specifically on their friends and family, or caregivers. The goal of this review was to examine the state of the literature on ovarian cancer caregivers.
A scoping review was conducted on any articles describing caregivers of patients with ovarian cancer. Databases were searched systematically using key terms related to ovarian cancer and caregiving. Both authors screened articles for eligibility. Grey literature was also consulted.
19 articles were identified after screening: nine quantitative, five qualitative, two mixed-methods, two case studies and a personal account. Quantitative studies were conducted over different time-points in the disease trajectory, whereas qualitative studies and the personal account spanned the whole trajectory. Collectively, the studies suggested that the experience of being a caregiver to patients with ovarian cancer changes overtime, as the first year post-diagnosis shows little compromise in wellbeing and quality of life, which then steadily declines throughout the rest of the disease trajectory. Studies commented on quality of life, distress, needs, social wellbeing, spirituality, relationships with healthcare providers, relationships with patients, physical health and financial wellbeing.
This scoping review of the literature demonstrates little peer-reviewed evidence on the experiences and quality-of-life of ovarian cancer caregivers. This population experiences physical and psychosocial challenges that merit exploration, to subsequently aid in designing interventions.
卵巢癌因其诊断较晚以及复发率和复发频率较高，与许多其他癌症诊断不同。患者的身心健康在文献中有充分记载，然而，专门针对其朋友、家人或护理人员的研究却很有限。本综述的目的是考察关于卵巢癌护理人员的文献现状。
对任何描述卵巢癌患者护理人员的文章进行了范围综述。使用与卵巢癌和护理相关的关键词对数据库进行了系统检索。两位作者对文章进行了合格性筛选。还查阅了灰色文献。
筛选后确定了19篇文章：9篇定量研究、5篇定性研究、2篇混合方法研究、2篇案例研究和1篇个人叙述。定量研究在疾病轨迹的不同时间点进行，而定性研究和个人叙述涵盖了整个轨迹。总体而言，研究表明，作为卵巢癌患者护理人员的经历会随时间而变化，因为诊断后的第一年幸福感和生活质量几乎没有受到影响，而在疾病轨迹的其余阶段则会稳步下降。研究评论了生活质量、痛苦、需求、社会幸福感、精神性、与医疗服务提供者的关系、与患者的关系、身体健康和经济幸福感。
本次文献范围综述表明，关于卵巢癌护理人员经历和生活质量的同行评议证据很少。这一人群面临的身体和心理社会挑战值得探索，以便随后有助于设计干预措施。
