Faculty of Nursing, Zarqa' University, Zarqa, 13132, Jordan.
Clinical Nursing Department, School of Nursing, The University of Jordan, Amman, 11942, Jordan.
Support Care Cancer. 2018 Nov;26(11):3967-3973. doi: 10.1007/s00520-018-4287-x. Epub 2018 May 26.
This study aimed to (1) assess the levels of burden and quality of sleep among family caregivers (FCs) of patients with cancer and (2) examine the predictors of burden among FCs of patients with cancer in Jordan.
A convenience sample of 111 FCs of patients with cancer has completed the Caregiver Burden Inventory and Pittsburgh Sleep Quality Index to assess the levels of burden and quality of sleep.
The mean and (standard deviation) of burden for FCs was 37.9 (16.3) indicating high level of burden. The mean and (standard deviation) of quality of sleep for FCs was 9.1 (4.3) reflecting poor quality of sleep. The multiple linear regression analysis was performed to identify the significant predictors of burden. The study model was able to explain 36% of variance in burden. Burden was significantly predicted by poor quality of sleep for FCs, stage of cancer for patients, side effects of treatment, presence of chronic illnesses among FCs, and the level of education for FCs.
Supportive care for FCs, considering all predictors of burden, needs to be considered in order to reduce their burden, which will consequently maintain their caregiving role.
本研究旨在:(1)评估癌症患者家属照顾者的负担和睡眠质量水平;(2)检验约旦癌症患者家属照顾者负担的预测因素。
采用便利抽样法,选取了 111 名癌症患者的家属照顾者,完成了照顾者负担量表和匹兹堡睡眠质量指数,以评估照顾者的负担和睡眠质量。
照顾者的负担平均值(标准差)为 37.9(16.3),表明负担水平较高。照顾者的睡眠质量平均值(标准差)为 9.1(4.3),反映出睡眠质量较差。进行多元线性回归分析以确定负担的显著预测因素。研究模型能够解释负担方差的 36%。照顾者的睡眠质量较差、患者的癌症分期、治疗的副作用、照顾者患有慢性病以及照顾者的教育水平是负担的显著预测因素。
为了降低照顾者的负担,从而维持他们的照顾角色,需要考虑对照顾者提供支持性护理,同时考虑所有负担的预测因素。