引言：在多发性硬化症中我们是否需要多方利益相关者座谈会？
Introduction: Do we need multi-stakeholder colloquia in MS?
作者信息
Vermersch Patrick, Smets Louis, Gold Ralf
机构信息
Department of Neurology, University of Lille, CHRU de Lille, Lille International Research Inflammation Center (LIRIC), INSRRM U995, FHU Imminent, Lille, France
Managing Director at Ismar Healthcare, Lier, Belgium.
出版信息
Mult Scler. 2016 Aug;22(2 Suppl):4-8. doi: 10.1177/1352458516650740.
BACKGROUND
In the increasingly complex environment of MS there is a need for better cross-talk and communication between the different stakeholders who each address MS according to their own perspective.
OBJECTIVE & METHODS: The first and second Pan-European MS Multi-stakeholder Colloquia were specifically set-up for this.
RESULTS
In May 2014 and May 2015, the different stakeholders in MS (patients, healthcare professionals, regulators, payers and pharmaceutical industry professionals) met to present and discuss each other's perspective, formulate 10 integrated Calls to Actions (first Colloquium) and discuss guidance propositions/recommendations developed by working groups for the Calls to Action (second Colloquium).
CONCLUSION
The perspectives of the different stakeholders and the 10 integrated Calls to Action are summarised in this supplement.
背景
在日益复杂的多发性硬化症环境中，不同利益相关者之间需要更好的相互交流与沟通，他们各自从自身角度应对多发性硬化症。
目的与方法
为此专门举办了首届和第二届泛欧洲多发性硬化症多利益相关者座谈会。
结果
2014年5月和2015年5月，多发性硬化症的不同利益相关者（患者、医疗保健专业人员、监管机构、支付方和制药行业专业人员）齐聚一堂，展示并讨论彼此的观点，制定了10项综合行动呼吁（首届座谈会），并讨论了各工作组为行动呼吁制定的指导建议（第二届座谈会）。
结论
本增刊总结了不同利益相关者的观点以及10项综合行动呼吁。
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