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年轻乳腺癌幸存者使用支持性护理的不平等现象与障碍:一项质性研究

Inequalities and Barriers to the Use of Supportive Care Among Young Breast Cancer Survivors: a Qualitative Understanding.

作者信息

Regnier Denois Veronique, Querre Madina, Chen Linjie, Barrault Marion, Chauvin Franck

机构信息

HYGEE-ICLN, Université de Lyon, EA HESPER 7425, F-69003, Lyon, France.

REVeSS (Recherches et Etudes sur les Vulnérabilités Sociales et la Santé), Bordeaux, France.

出版信息

J Cancer Educ. 2017 Dec;32(4):790-798. doi: 10.1007/s13187-016-1087-1.

Abstract

The development of supportive care for cancer patients has been shown to have a positive impact on both mortality rates and many aspects of life after cancer, particularly in young women. Meanwhile, there are still numerous inequalities in terms of cancer mortalities and quality of life among cancer survivors in France. The processes leading to unequal access to supportive care services, and the impact this has on the post-treatment period, have been poorly documented, however. The goal of this study was to understand the barriers to using supportive care services among young women breast cancer survivors under the age of 50 and to find out how this can contribute to inequalities. Thirty-six young breast cancer survivors, one third of which deemed socially deprived, were interviewed using a qualitative, inductive approach at two comprehensive care centres in France. Our findings primarily show that there are still a number of barriers to accessing supportive care for a large number of patients. The way information about supportive services is delivered is a major cause of inequalities in the use of these services. The guidance provided does not take into account either the patients' needs or their capacity to integrate the information and anticipate problems. Certain specific post-treatment issues have yet to be addressed. Some systemic barriers could be lifted by changing the way information on supportive care services is currently organised and thereby prevent the survivorship plans now being implemented in cancer care settings from reinforcing health inequalities.

摘要

事实表明,为癌症患者提供支持性护理对死亡率以及癌症后生活的诸多方面都有积极影响,尤其是对年轻女性。与此同时,法国癌症幸存者在癌症死亡率和生活质量方面仍存在诸多不平等现象。然而,导致获得支持性护理服务机会不平等的过程以及这对治疗后时期的影响,却鲜有文献记载。本研究的目的是了解50岁以下年轻女性乳腺癌幸存者在使用支持性护理服务方面的障碍,并探究这如何导致不平等现象。在法国的两个综合护理中心,我们采用定性归纳法对36名年轻乳腺癌幸存者进行了访谈,其中三分之一被认为在社会经济方面处于劣势。我们的研究结果主要表明,大量患者在获得支持性护理方面仍存在诸多障碍。支持性服务信息的传递方式是这些服务使用不平等的主要原因。所提供的指导既没有考虑患者的需求,也没有考虑他们整合信息和预见问题的能力。某些特定的治疗后问题尚未得到解决。通过改变目前支持性护理服务信息的组织方式,可以消除一些系统性障碍,从而防止目前癌症护理环境中实施的生存计划加剧健康不平等现象。

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