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行动呼吁:乳腺癌患者及其伴侣在早期康复期间改善服务协调的必要性。

A call to action: The need for improved service coordination during early survivorship for women with breast cancer and partners.

作者信息

Keesing Sharon, Rosenwax Lorna, McNamara Beverley

机构信息

a School of Occupational Therapy and Social Work , Curtin University , Perth , Australia.

b Health Sciences , Curtin University , Perth , Australia.

出版信息

Women Health. 2019 Apr;59(4):406-419. doi: 10.1080/03630242.2018.1478362. Epub 2018 Aug 24.

Abstract

Survivorship is an under-recognized period in the care of women with breast cancer. This paper aimed to determine if supports provided by health services were adequate in meeting the expressed needs of women and partners during survivorship. A mixed-method study consisted of: (1) in-depth interviews with women (n = 18) and partners (n = 8) (completed June 2014-November 2014) and (2) a questionnaire with health providers (n = 34) (completed April 2015) regarding services offered, needs addressed, and barriers to service delivery. Both were completed in Perth, Western Australia. Findings were determined using thematic analysis and descriptive statistics. Many unmet needs were identified by women and partners, including: pain, fatigue, fear of recurrence, employment, leisure, and social and intimacy difficulties. Participants did not receive a formal plan to assist them. Health providers reported a range of supports, including cancer surveillance and management of physical, psychological, emotional, and relationship concerns. However, many barriers concerning service delivery were identified. Despite services reporting that they provided various supports, interview participants did not appear to use and benefit from these. Coordination of service delivery was identified as requiring improvement. The use of survivorship care plans also needs refinement to determine suitability for use during survivorship.

摘要

癌症康复期是乳腺癌女性护理中一个未得到充分认识的阶段。本文旨在确定卫生服务提供的支持是否足以满足女性及其伴侣在癌症康复期所表达的需求。一项混合方法研究包括:(1)对女性(n = 18)及其伴侣(n = 8)进行深入访谈(于2014年6月至2014年11月完成),以及(2)向卫生服务提供者(n = 34)发放一份问卷(于2015年4月完成),内容涉及所提供的服务、解决的需求以及服务提供的障碍。两项研究均在西澳大利亚州的珀斯完成。研究结果通过主题分析和描述性统计得出。女性及其伴侣指出了许多未得到满足的需求,包括:疼痛、疲劳、对复发的恐惧、就业、休闲以及社交和亲密关系方面的困难。参与者未收到协助他们的正式计划。卫生服务提供者报告了一系列支持措施,包括癌症监测以及对身体、心理、情感和人际关系问题的管理。然而,研究发现了许多服务提供方面的障碍。尽管各服务机构称提供了各种支持,但访谈参与者似乎并未使用这些支持,也未从中受益。研究确定服务提供的协调需要改进。癌症康复期护理计划的使用也需要完善,以确定其在癌症康复期使用的适用性。

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