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一项探索卫生专业人员治疗痛风经验的定性研究:了解有效痛风管理中存在的认知障碍。

A qualitative study to explore health professionals' experience of treating gout: understanding perceived barriers to effective gout management.

作者信息

Humphrey Chloe, Hulme Richard, Dalbeth Nicola, Gow Peter, Arroll Bruce, Lindsay Karen

机构信息

Medical student, University of Auckland.

East Tamaki Healthcare.

出版信息

J Prim Health Care. 2016 Jun;8(2):149-56. doi: 10.1071/HC15017.

Abstract

INTRODUCTION The management of gout is challenging and mainly occurs in primary care. This study aims to explore the experience of treating gout among primary care clinicians and understand the perceived barriers to effective therapy. METHODS Fourteen health professionals from primary care practices in South Auckland were recruited. Each participated in a semi-structured interview exploring their experience of treating and managing gout patients were analysed thematically. FINDINGS Participants described the large burden of gout in their communities and the importance of the clinician-patient relationship in gout management. Four themes summarise the perceived barriers to effective urate lowering therapy (ULT); unique gout factors, eg its intermittent nature and potential for stigmatisation; systemic barriers to optimal treatment, or barriers that emerge from working within a certain organisation; uncertainty about ownership, or who should carry responsibility for overcoming barriers to optimal treatment; and cultural barriers to optimal treatment. CONCLUSION Clinicians in primary practice perceive gout management to be mainly acute rather than preventive care. Patients may be stigmatised and management difficult particularly when diet is emphasised over ULT. Practice nurses are a group potentially available and willing to assist in educating patients. These findings may be helpful in planning for and improving healthcare in gout. KEYWORDS Gout; general practice; uric acid; primary health care; allopurinol; primary prevention.

摘要

引言 痛风的管理具有挑战性,且主要在初级保健中进行。本研究旨在探索初级保健临床医生治疗痛风的经验,并了解有效治疗的感知障碍。方法 招募了来自南奥克兰初级保健机构的14名卫生专业人员。每人参加了一次半结构化访谈,探讨他们治疗和管理痛风患者的经验,并进行了主题分析。结果 参与者描述了痛风在其社区中的沉重负担以及医患关系在痛风管理中的重要性。四个主题总结了有效降尿酸治疗(ULT)的感知障碍;独特的痛风因素,如间歇性发作和潜在的污名化;最佳治疗的系统性障碍,或在特定组织内工作产生的障碍;所有权的不确定性,即谁应负责克服最佳治疗的障碍;以及最佳治疗的文化障碍。结论 初级保健临床医生认为痛风管理主要是急性治疗而非预防性护理。患者可能会受到污名化,管理困难,尤其是在强调饮食而非ULT时。执业护士是一个可能愿意并能够协助患者教育的群体。这些发现可能有助于痛风医疗保健的规划和改善。关键词 痛风;全科医疗;尿酸;初级卫生保健;别嘌醇;一级预防

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