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“一次一个发作”:应对炎症性肠病和肠易激综合征的女性的适应性和适应不良行为

"One Flare at a Time": Adaptive and Maladaptive Behaviors of Women Coping With Inflammatory Bowel Disease and Irritable Bowel Syndrome.

作者信息

Skrastins Olivia, Fletcher Paula C

机构信息

Author Affiliations: Undergraduate Student (Ms Skrastins); Professor and Graduate Coordinator (Dr Fletcher), Department of Kinesiology, Wilfrid Laurier University, Waterloo, Ontario, Canada.

出版信息

Clin Nurse Spec. 2016 Sep-Oct;30(5):E1-E11. doi: 10.1097/NUR.0000000000000229.

Abstract

PURPOSE

The purpose of this investigation is to study the lived experiences of female postsecondary students diagnosed with inflammatory bowel disease and/or irritable bowel syndrome.

METHODS

Nine women between the ages of 18 and 26 years were recruited to participate in this study. Participants completed an informed consent form and background questionnaire before completing a semi-structured one-on-one interview. This interview explored the lived experiences of these individuals in relation to condition management.

RESULTS

Three salient themes that emerged from the data included (1) it can add to my life; (2) why me: my condition runs my life; and (3) I'm doing the best I can with what I have. The salient theme of I'm doing the best I can with what I have, the theme addressed in this article, was subdivided into adaptive and maladaptive coping behaviors. Reasons for the use of these behaviors included to avoid triggers or flare-ups/harmful effects, to achieve instant relief/pleasure, to respond to environmental pressures, and to become accustomed to dealing with the everyday hassles of their conditions.

CONCLUSION

Community health nurses may become part of the solution to help women with inflammatory bowel disease and irritable bowel syndrome find more adaptive coping behaviors. Other implications are discussed.

摘要

目的

本调查旨在研究被诊断患有炎症性肠病和/或肠易激综合征的女性高等院校学生的生活经历。

方法

招募了9名年龄在18至26岁之间的女性参与本研究。参与者在完成半结构化一对一访谈之前,先填写了知情同意书和背景调查问卷。该访谈探讨了这些个体在疾病管理方面的生活经历。

结果

从数据中浮现出的三个突出主题包括:(1)它能丰富我的生活;(2)为什么是我:我的病情主宰了我的生活;(3)我在尽我所能利用我所拥有的。本文所探讨的“我在尽我所能利用我所拥有的”这一突出主题,又细分为适应性和适应不良的应对行为。使用这些行为的原因包括避免触发因素或病情发作/有害影响、获得即时缓解/愉悦、应对环境压力以及习惯应对自身病情的日常麻烦。

结论

社区健康护士可能成为帮助患有炎症性肠病和肠易激综合征的女性找到更多适应性应对行为的解决方案的一部分。还讨论了其他影响。

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