University of Saskatchewan, Saskatoon, Saskatchewan, Canada.
University of Victoria, Victoria, British Columbia, Canada.
Qual Health Res. 2021 Aug;31(10):1918-1936. doi: 10.1177/10497323211011442. Epub 2021 May 13.
Past studies have revealed a dizzying array of coping techniques employed by persons living with inflammatory bowel disease (IBD). Unfortunately, research has provided little insight into when and why individuals adopt or abandon particular coping strategies. Using a retrospective narrative approach, we explored how participants made sense of changes in their approach to coping over time. Shifts in coping strategies were associated with particular illness experiences that wrought new understandings of IBD and novel identity challenges. They followed a common processual form and were marked by a movement away from techniques of purification, normalization, and banalization toward the development of a more communicative body. This was accompanied by notable shifts in identity work. Notably, participants moved from a preoccupation with maintaining continuity and sameness to permitting their extraordinary bodies to occupy a place in their public and personal identities. Implications of this process for theory and practice are discussed.
过去的研究揭示了患有炎症性肠病(IBD)的人所采用的令人眼花缭乱的一系列应对技巧。不幸的是,研究几乎没有深入了解个人何时以及为何采用或放弃特定的应对策略。我们采用回顾性叙述方法,探讨了参与者如何随着时间的推移理解他们应对方式的变化。应对策略的转变与特定的疾病经历有关,这些经历使他们对 IBD 有了新的认识,并带来了新的身份挑战。这些转变遵循着一种常见的过程形式,其特点是摆脱了净化、正常化和平凡化的技巧,转而发展出更具沟通性的身体。这伴随着身份认同工作的显著转变。值得注意的是,参与者从专注于保持连续性和同一性转变为允许他们非凡的身体在他们的公共和个人身份中占据一席之地。本文讨论了这一过程对理论和实践的影响。