Skrastins Olivia, Fletcher Paula C
Author Affiliations: Graduate Student, Physical Therapy, University of Toronto (Ms Skrastins); and Professor, Department of Kinesiology and Physical Education, Wilfrid Laurier University, Waterloo (Dr Fletcher), Ontario, Canada.
Clin Nurse Spec. 2018 Jan/Feb;32(1):43-51. doi: 10.1097/NUR.0000000000000345.
This study aimed to explore the lived experiences of women diagnosed with inflammatory bowel disease and/or irritable bowel syndrome enrolled in postsecondary education.
Nine women aged 18 to 26 years participated in this study. Data collection consisted of an informed consent form, a background questionnaire, and a semistructured one-on-one interview. This interview explored the lived experiences of these individuals regarding perceived positive and negative effects of living with these conditions.
Salient themes that emerged from the data were (1) "It can add to my life," (2) "Why me?: My condition runs my life," and (3) "I'm doing the best I can with what I have." Themes 1 and 2, the themes addressed in this article, were subdivided into (1) change in perception of self, condition, and others and (2) healthy lifestyle and (1) unpredictability and inconsistencies of inflammatory bowel disease/irritable bowel syndrome, (2) lack of understanding, and (3) the inconvenience of inflammatory bowel disease/irritable bowel syndrome, respectively. All participants expressed both positive and negative effects of living with their conditions.
Community health nurses should be aware of the positive and negative effects of living with these conditions to help build relationships and assist with condition management. Other implications are discussed.
本研究旨在探索被诊断患有炎症性肠病和/或肠易激综合征且接受高等教育的女性的生活经历。
9名年龄在18至26岁之间的女性参与了本研究。数据收集包括一份知情同意书、一份背景调查问卷以及一次半结构化的一对一访谈。此次访谈探讨了这些个体在患有这些疾病的情况下所感知到的积极和消极影响方面的生活经历。
从数据中浮现出的显著主题有：（1）“它能丰富我的生活”，（2）“为什么是我？：我的病情主宰了我的生活”，以及（3）“我在尽我所能利用我所拥有的”。本文所探讨的主题1和主题2又分别细分为：（1）自我、病情及他人认知的改变和（2）健康的生活方式，以及（1）炎症性肠病/肠易激综合征的不可预测性和不稳定性，（2）缺乏理解，（3）炎症性肠病/肠易激综合征带来的不便。所有参与者都表达了患有这些疾病对生活产生的积极和消极影响。
社区健康护士应了解患有这些疾病所带来的积极和消极影响，以帮助建立关系并协助进行病情管理。还讨论了其他相关影响。
