Fairman Andrea D, Yih Erika T, McCoy Daniel F, Lopresti Edmund F, McCue Michael P, Parmanto Bambang, Dicianno Brad E
MGH INSTITUTE OF HEALTH PROFESSIONS, SCHOOL OF HEALTH AND REHABILITATION SCIENCES, DEPARTMENT OF OCCUPATIONAL THERAPY, BOSTON, MASSACHUSETTS, USA.
UNIVERSITY OF PITTSBURGH SCHOOL OF MEDICINE, PITTSBURGH, PENNSYLVANIA, USA.
Int J Telerehabil. 2016 Jul 1;8(1):11-20. doi: 10.5195/ijt.2016.6194. eCollection 2016 Spring.
A novel mobile health platform, Interactive Mobile Health and Rehabilitation (iMHere), is being developed to support wellness and self-management among people with chronic disabilities. The iMHere system currently includes a smartphone app with six modules for use by persons with disabilities and a web portal for use by medical and rehabilitation professionals or other support personnel. Our initial clinical research applying use of this system provides insight into the feasibility of employing iMHere in the development of self-management skills in young adults (ages 18-40 years) with spina bifida (SB) (Dicianno, Fairman, et al., 2015). This article describes the iterative design of the iMHere system including usability testing of both the app modules and clinician portal. Our pilot population of persons with SB fostered the creation of a system appropriate for people with a wide variety of functional abilities and needs. As a result, the system is appropriate for use by persons with various disabilities and chronic conditions, not only SB. In addition, the diversity of professionals and support personnel involved in the care of persons with SB also enabled the design and implementation of the iMHere system to meet the needs of an interdisciplinary team of providers who treat various conditions. The iMHere system has the potential to foster communication and collaboration among members of an interdisciplinary healthcare team, including individuals with chronic conditions and disabilities, for a client-centered approach to support self-management skills.
一个名为“交互式移动健康与康复（iMHere）”的新型移动健康平台正在开发中，以支持慢性残疾患者的健康和自我管理。iMHere系统目前包括一个智能手机应用程序，有六个模块供残疾人士使用，以及一个网络门户供医疗和康复专业人员或其他支持人员使用。我们最初应用该系统的临床研究，深入了解了在患有脊柱裂（SB）的18至40岁年轻成年人中使用iMHere来培养自我管理技能的可行性（迪恰诺、费尔曼等人，2015年）。本文描述了iMHere系统的迭代设计，包括应用程序模块和临床医生门户的可用性测试。我们以患有脊柱裂的人群作为试点，促成了一个适合具有广泛功能能力和需求的人群的系统的创建。因此，该系统不仅适用于患有脊柱裂的人，也适用于患有各种残疾和慢性病的人。此外，参与脊柱裂患者护理的专业人员和支持人员的多样性，也使得iMHere系统的设计和实施能够满足治疗各种病症的跨学科医疗团队的需求。iMHere系统有潜力促进跨学科医疗团队成员之间的沟通与协作，包括患有慢性病和残疾的个人，以采用以客户为中心的方法来支持自我管理技能。
