Downing J, Kiman R, Boucher S, Nkosi B, Steel B, Marston C, Lascar E, Marston J
International Children's Palliative Care Network, New Bond House, Bond Street, Bristol, UK; Palliative Care, Makerere University, PO Box 7072, Kampala, Uganda.
Paediatric Palliative Care, Hospital Nacional Prof A Posadas, Av Pres Arturo U Illia, Villa Sarmiento, Buenos Aires, Argentina.
Ecancermedicalscience. 2016 Aug 23;10:667. doi: 10.3332/ecancer.2016.667. eCollection 2016.
The International Children's Palliative Care Network held its second international conference on children's palliative care in Buenos Aires, Argentina, from the 18th-21st May 2016. The theme of the conference was 'Children's Palliative Care…. Now!' emphasising the need for palliative care for children now, as the future will be too late for many of them. Six pre-conference workshops were held, addressing issues connected to pain assessment and management, adolescent palliative care, ethics and decision-making, developing programmes, the basics of children's palliative care, and hidden aspects of children's palliative care. The conference brought together 410 participants from 40 countries. Plenary, concurrent, and poster presentations covered issues around the status of children's palliative care, genetics, perinatal and neonatal palliative care, the impact of children's palliative care and the experiences of parents and volunteers, palliative care as a human right, education in children's palliative care, managing complex pain in children, spiritual care and when to initiate palliative care. The 'Big Debate' explored issues around decision-making and end of life care in children, and gave participants the opportunity to explore a sensitive and thought provoking topic. At the end of the conference, delegates were urged to sign the Commitment of Buenos Aires which called for governments to implement the WHA resolution and ensure access to palliative care for neonates, children and their families, and also commits us as palliative care providers to share all that we can and collaborate with each other to achieve the global vision of palliative care for all children who need it. The conference highlighted the ongoing issues in children's palliative care and participants were continually challenged to ensure that children can access palliative care NOW.
国际儿童姑息治疗网络于2016年5月18日至21日在阿根廷布宜诺斯艾利斯举办了第二届儿童姑息治疗国际会议。会议主题为“儿童姑息治疗……刻不容缓!”,强调当下就需要为儿童提供姑息治疗,因为对他们中的许多人来说,未来就太晚了。会议举办了六场会前研讨会,探讨了与疼痛评估和管理、青少年姑息治疗、伦理与决策、项目开发、儿童姑息治疗基础以及儿童姑息治疗的隐蔽方面相关的问题。此次会议汇聚了来自40个国家的410名参会者。全会、并行会议及海报展示涵盖了儿童姑息治疗的现状、遗传学、围产期和新生儿姑息治疗、儿童姑息治疗的影响以及家长和志愿者的经历、姑息治疗作为一项人权、儿童姑息治疗教育、儿童复杂疼痛管理、精神关怀以及何时开始姑息治疗等问题。“大辩论”探讨了儿童决策和临终关怀相关问题,让参会者有机会探讨一个敏感且发人深省的话题。会议结束时,敦促代表们签署《布宜诺斯艾利斯承诺》,该承诺呼吁各国政府执行世界卫生大会决议,确保为新生儿、儿童及其家庭提供姑息治疗,同时也让我们这些姑息治疗提供者承诺尽我们所能分享并相互协作,以实现为所有有需要的儿童提供姑息治疗的全球愿景。此次会议突出了儿童姑息治疗中存在的持续问题,参会者不断受到挑战,要确保儿童现在就能获得姑息治疗。