Haskin Alessandra, Aguh Crystal, Okoye Ginette A
a Department of Dermatology, Howard University College of Medicine , Washington , DC , USA.
b Department of Dermatology , Johns Hopkins School of Medicine , Baltimore , MD , USA.
J Dermatolog Treat. 2017 Jun;28(4):318-321. doi: 10.1080/09546634.2016.1230176. Epub 2016 Sep 22.
Alopecia can have a significant negative impact on patient's lives. The objective of this study is to describe some of the emotional and psychological challenges that affect women with scarring alopecia (SA).
A qualitative study design was used with open-ended, individual interviews with 10 women with biopsy-proven SA. Interviews were audio-taped, transcribed verbatim and analyzed thematically using ATLAS.ti analysis software.
Four overarching major themes (with several subthemes) emerged including the following: the negative emotional impact of SA, difficulties with concealing hair loss, negative experiences with diagnosis/management, and the importance of support from others. Patients reported that many of these issues were under-emphasized during doctor visits.
Analysis of patient responses indicated that patients with SA contend with significant emotional and psychological sequelae of their diagnosis.
脱发会对患者的生活产生重大负面影响。本研究的目的是描述一些影响瘢痕性脱发（SA）女性的情感和心理挑战。
采用定性研究设计，对10名经活检证实患有SA的女性进行开放式个人访谈。访谈进行录音，逐字转录，并使用ATLAS.ti分析软件进行主题分析。
出现了四个总体主题（以及几个子主题），包括以下内容：SA的负面情感影响、掩盖脱发的困难、诊断/治疗的负面经历以及他人支持的重要性。患者报告说，在看医生时，许多这些问题没有得到足够重视。
对患者回答的分析表明，SA患者在诊断后会面临重大的情感和心理后遗症。
