Caro Camila Caminha, Mendes Paulo Vinicius Braga, Costa Jacqueline Denubila, Nock Lauren Jane, Cruz Daniel Marinho Cezar da
a Postgraduate Program in Occupational Therapy , Federal University of São Carlos , São Carlos , Brazil.
b School of Health and Life Sciences , Coventry University , Coventry , UK.
Top Stroke Rehabil. 2017 Apr;24(3):194-199. doi: 10.1080/10749357.2016.1234224. Epub 2016 Sep 19.
Stroke is a chronic disease responsible for changes in the functional capacity of the patients. Patient care is usually provided by family caregivers, but with great burden and negative impact on their quality of life.
(1) To investigate whether a correlation existed between the levels of independence and cognition in stroke patients and the burden and quality of life of their caregivers; (2) to assess whether periods of injury, rehabilitation and care, and age of the stroke patients interfered with these correlations.
This was a cross-sectional and correlational study that included 60 participants, of which 30 were post-stroke patients and 30 were their caregivers. The data collection instruments were the Mini Mental State Examination and the Functional Independence Measure for the post-stroke participants, and the Zarit Burden Interview Scale and the World Health Organization Quality of Life-BREF, for the caregivers. The Pearson's product-moment correlation was used for the data analysis.
Independence and cognition showed no correlation with the burden and quality of life of the caregivers. We identified a strong positive correlation between independence and cognition (r = 0.882), and a moderate negative correlation between independence and rehabilitation period (r = -0.398) and between burden and quality of life of the caregivers (r = -0.414).
Our data suggest the need for health interventions aimed not only at stroke patients, but also at their family caregivers, given the association between the burden and the low levels of quality of life of the caregivers.
中风是一种慢性病，会导致患者功能能力发生变化。患者护理通常由家庭照顾者提供，但这给他们带来了巨大负担，并对其生活质量产生负面影响。
（1）调查中风患者的独立水平和认知水平与其照顾者的负担及生活质量之间是否存在相关性；（2）评估中风患者的受伤、康复和护理时期以及年龄是否会干扰这些相关性。
这是一项横断面相关性研究，纳入了60名参与者，其中30名是中风后患者，30名是他们的照顾者。数据收集工具包括针对中风后参与者的简易精神状态检查表和功能独立性测量表，以及针对照顾者的 Zarit 负担访谈量表和世界卫生组织生活质量简表。数据分析采用Pearson积差相关法。
独立性和认知与照顾者的负担及生活质量没有相关性。我们发现独立性和认知之间存在强正相关（r = 0.882），独立性与康复期之间存在中度负相关（r = -0.398），照顾者的负担与生活质量之间存在中度负相关（r = -0.414）。
我们的数据表明，鉴于照顾者的负担与低生活质量之间的关联，不仅需要针对中风患者，还需要针对其家庭照顾者进行健康干预。
