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了解青少年和青年癌症患者的经历:一项元综合分析。

Understanding the experiences of adolescents and young adults with cancer: A meta-synthesis.

作者信息

Kim Bora, White Kate, Patterson Pandora

机构信息

School of Nursing, The University of Wollongong, Building 41, 215 Northfields Ave, Keiraville, NSW, Australia; Sydney Nursing School, The University of Sydney, 88 Mallett Street, Camperdown NSW, Australia.

Sydney Nursing School, The University of Sydney, 88 Mallett Street, Camperdown NSW, Australia; Cancer Nursing Research Unit, Level 6 North, The Chris O'Brien Life house, 119-143 Missenden Road, Camperdown NSW, Australia.

出版信息

Eur J Oncol Nurs. 2016 Oct;24:39-53. doi: 10.1016/j.ejon.2016.06.002. Epub 2016 Sep 7.

DOI:10.1016/j.ejon.2016.06.002
PMID:27697276
Abstract

PURPOSE

To conduct a meta-synthesis of qualitative studies exploring experiences of young cancer patients to identify the overarching concepts that inform future service and research directions.

METHOD

A systematic literature search was conducted, and 51 articles published between January 2004 and March 2014 were collected via CINAHL, Medline and PsycINFO databases. Deductive thematic analysis was conducted to identify major themes, guided by Hermeneutic notions on interpretation.

RESULTS

Cancer impacted a wide range of life domains. These impacts were interconnected and bi-directional. The meanings of these impacts were closely related to their unique developmental needs and a social position as youth. Emotional struggles during these radical changes were evident, but efforts to make sense of their experiences and find meaning pervaded.

CONCLUSIONS

Given the interrelated nature of the cancer challenges young cancer patients experience, there needs to be an emphasis on conducting studies which further refine our understanding of these relationships. This can help to structure effective youth cancer services. Generic informational resources and support services should be tailored so that they have relevance to the young person's life context. The treating team has an important role in fostering young patients' ability to make sense of their experiences by providing developmentally-relevant psychosocial support.

摘要

目的

对探索年轻癌症患者经历的定性研究进行元综合分析,以确定为未来服务和研究方向提供信息的总体概念。

方法

进行了系统的文献检索,通过CINAHL、Medline和PsycINFO数据库收集了2004年1月至2014年3月发表的51篇文章。在解释学解释概念的指导下,进行了演绎主题分析以确定主要主题。

结果

癌症影响了广泛的生活领域。这些影响相互关联且双向。这些影响的意义与其独特的发展需求和作为年轻人的社会地位密切相关。在这些剧烈变化中情感挣扎很明显,但努力理解自己的经历并寻找意义贯穿始终。

结论

鉴于年轻癌症患者所经历的癌症挑战具有相互关联的性质,需要强调开展进一步完善我们对这些关系理解的研究。这有助于构建有效的青少年癌症服务。通用信息资源和支持服务应进行调整,使其与年轻人的生活背景相关。治疗团队在通过提供与发展相关的心理社会支持来培养年轻患者理解自身经历的能力方面发挥着重要作用。

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