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本文引用的文献

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Cancer Nurs. 2023;46(2):143-151. doi: 10.1097/NCC.0000000000001087. Epub 2022 Dec 11.
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Coping with cancer: A qualitative study of adolescent and young adult perspectives.应对癌症:青少年和年轻成人观点的定性研究。
Patient Educ Couns. 2022 Apr;105(4):974-981. doi: 10.1016/j.pec.2021.07.034. Epub 2021 Jul 24.
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Trends in Cancer Incidence in US Adolescents and Young Adults, 1973-2015.美国青少年和青年人群癌症发病率趋势,1973-2015 年。
JAMA Netw Open. 2020 Dec 1;3(12):e2027738. doi: 10.1001/jamanetworkopen.2020.27738.
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The Needs and Experiences of Post-Treatment Adolescent and Young Adult Cancer Survivors.治疗后青少年及青年癌症幸存者的需求与经历
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The Role of Social Support in Adolescent/Young Adults Coping with Cancer Treatment.社会支持在青少年/青年成人应对癌症治疗中的作用。
Children (Basel). 2019 Dec 23;7(1):2. doi: 10.3390/children7010002.
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The Role of Health Consciousness, Patient-Physician Trust, and Perceived Physician's Emotional Appraisal on Medical Adherence.健康意识、医患信任和医生情感评估对医疗依从性的作用。
Health Educ Behav. 2019 Dec;46(6):991-1000. doi: 10.1177/1090198119859407. Epub 2019 Jul 1.
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A qualitative study of adolescent and young adult cancer survivors' perceptions of family and peer support.青少年和青年癌症幸存者对家庭和同伴支持的看法的定性研究。
J Health Psychol. 2020 Apr;25(5):713-726. doi: 10.1177/1359105318769366. Epub 2018 Apr 24.
9
Health professional-patient communication practices in East Asia: An integrative review of an emerging field of research and practice in Hong Kong, South Korea, Japan, Taiwan, and Mainland China.东亚地区的医患沟通实践:对香港、韩国、日本、台湾和中国大陆这一新兴研究和实践领域的综合述评。
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Experiences of peer exclusion and victimization, cognitive functioning, and depression among adolescent cancer survivors in South Korea.韩国青少年癌症幸存者的同伴排斥和受害经历、认知功能与抑郁。
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韩国青少年和年轻癌症患者所感受到的来自家人、朋友及医疗服务提供者的社会支持的衡量

Measure of perceived social support from family, friends, and healthcare providers for Korean adolescents and young adults with cancer.

作者信息

Son Heeyeon, Hong Sungsil, Hong Michin, Silva Susan G

机构信息

College of Nursing, University of Tennessee, Knoxville, TN, USA.

Department of Nursing, Kangwon National University, Samcheok, South Korea.

出版信息

Asia Pac J Oncol Nurs. 2023 May 19;10(7):100244. doi: 10.1016/j.apjon.2023.100244. eCollection 2023 Jul.

DOI:10.1016/j.apjon.2023.100244
PMID:37448534
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10336414/
Abstract

OBJECTIVE

Assessing the perceived social support (PSS) that adolescents and young adults (AYAs) with cancer receive from family, friends, and healthcare providers is critical to promoting their adjustment. This study developed a reliable and comprehensive self-report PSS assessment tool that measures various aspects of social support by translating existing measurements into Korean.

METHODS

The translation was completed in accordance with international guidelines. To focus on cultural adaptation, the main ideas associated with items were translated to reflect the differences between Western and Eastern culture. In total, 144 Korean AYAs with cancer (mean age: 17 years; 46% female) completed the translated version. A separate principal component analysis (PCA) with an orthogonal quartimax rotation, a minimum eigenvalue of 1.0, and minimum factor loadings of 0.50 was used for each subscale. Cronbach's alpha coefficients were calculated for each PCA-derived subscale.

RESULTS

Four subscales with 46 items were identified. Two subscales represented perceived emotional support within the family (PSS-ESF, 14 items) and the AYA's perceived helpfulness within the family (PSS-HWF, 3 items). The third scale represented the perceived support of friends (PSS-Friends, 14 items). The final scale represented the perceived support of healthcare providers (PSS-HCPs, 15 items). Excellent reliability per subscale was demonstrated (Cronbach's alpha: 0.93 for PSS-ESF, 0.73 for PSS-HWF, and 0.92 each for PSS-Friends and PSS-HCPs).

CONCLUSIONS

A culturally adapted and reliable Korean version questionnaire with four independent subscales was developed. Further assessment of the Korean PSS is required and will contribute to the development of culturally adapted and tailored interventions.

摘要

目的

评估癌症青少年和青年(AYA)从家人、朋友和医疗服务提供者那里获得的感知社会支持(PSS)对于促进他们的适应至关重要。本研究开发了一种可靠且全面的自我报告PSS评估工具,该工具通过将现有测量工具翻译成韩语来测量社会支持的各个方面。

方法

翻译按照国际指南完成。为了专注于文化适应,与项目相关的主要思想被翻译以反映西方和东方文化之间的差异。共有144名患有癌症的韩国AYA(平均年龄:17岁;46%为女性)完成了翻译版本。每个子量表使用单独的主成分分析(PCA),采用正交四次最大旋转、最小特征值为1.0以及最小因子载荷为0.50。为每个PCA衍生的子量表计算克朗巴哈α系数。

结果

确定了四个包含46个条目的子量表。两个子量表代表家庭内部感知到的情感支持(PSS - ESF,14个条目)和AYA在家庭中的感知帮助程度(PSS - HWF,3个条目)。第三个量表代表朋友的感知支持(PSS - Friends,14个条目)。最后一个量表代表医疗服务提供者的感知支持(PSS - HCPs,15个条目)。每个子量表都显示出极好的信度(克朗巴哈α系数:PSS - ESF为0.93,PSS - HWF为0.73,PSS - Friends和PSS - HCPs均为0.92)。

结论

开发了一个具有四个独立子量表的经过文化适应且可靠的韩语版问卷。需要对韩国版PSS进行进一步评估,这将有助于开发文化适应且量身定制的干预措施。