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韩国青少年和年轻癌症患者所感受到的来自家人、朋友及医疗服务提供者的社会支持的衡量

Measure of perceived social support from family, friends, and healthcare providers for Korean adolescents and young adults with cancer.

作者信息

Son Heeyeon, Hong Sungsil, Hong Michin, Silva Susan G

机构信息

College of Nursing, University of Tennessee, Knoxville, TN, USA.

Department of Nursing, Kangwon National University, Samcheok, South Korea.

出版信息

Asia Pac J Oncol Nurs. 2023 May 19;10(7):100244. doi: 10.1016/j.apjon.2023.100244. eCollection 2023 Jul.

Abstract

OBJECTIVE

Assessing the perceived social support (PSS) that adolescents and young adults (AYAs) with cancer receive from family, friends, and healthcare providers is critical to promoting their adjustment. This study developed a reliable and comprehensive self-report PSS assessment tool that measures various aspects of social support by translating existing measurements into Korean.

METHODS

The translation was completed in accordance with international guidelines. To focus on cultural adaptation, the main ideas associated with items were translated to reflect the differences between Western and Eastern culture. In total, 144 Korean AYAs with cancer (mean age: 17 years; 46% female) completed the translated version. A separate principal component analysis (PCA) with an orthogonal quartimax rotation, a minimum eigenvalue of 1.0, and minimum factor loadings of 0.50 was used for each subscale. Cronbach's alpha coefficients were calculated for each PCA-derived subscale.

RESULTS

Four subscales with 46 items were identified. Two subscales represented perceived emotional support within the family (PSS-ESF, 14 items) and the AYA's perceived helpfulness within the family (PSS-HWF, 3 items). The third scale represented the perceived support of friends (PSS-Friends, 14 items). The final scale represented the perceived support of healthcare providers (PSS-HCPs, 15 items). Excellent reliability per subscale was demonstrated (Cronbach's alpha: 0.93 for PSS-ESF, 0.73 for PSS-HWF, and 0.92 each for PSS-Friends and PSS-HCPs).

CONCLUSIONS

A culturally adapted and reliable Korean version questionnaire with four independent subscales was developed. Further assessment of the Korean PSS is required and will contribute to the development of culturally adapted and tailored interventions.

摘要

目的

评估癌症青少年和青年(AYA)从家人、朋友和医疗服务提供者那里获得的感知社会支持(PSS)对于促进他们的适应至关重要。本研究开发了一种可靠且全面的自我报告PSS评估工具,该工具通过将现有测量工具翻译成韩语来测量社会支持的各个方面。

方法

翻译按照国际指南完成。为了专注于文化适应,与项目相关的主要思想被翻译以反映西方和东方文化之间的差异。共有144名患有癌症的韩国AYA(平均年龄:17岁;46%为女性)完成了翻译版本。每个子量表使用单独的主成分分析(PCA),采用正交四次最大旋转、最小特征值为1.0以及最小因子载荷为0.50。为每个PCA衍生的子量表计算克朗巴哈α系数。

结果

确定了四个包含46个条目的子量表。两个子量表代表家庭内部感知到的情感支持(PSS - ESF,14个条目)和AYA在家庭中的感知帮助程度(PSS - HWF,3个条目)。第三个量表代表朋友的感知支持(PSS - Friends,14个条目)。最后一个量表代表医疗服务提供者的感知支持(PSS - HCPs,15个条目)。每个子量表都显示出极好的信度(克朗巴哈α系数:PSS - ESF为0.93,PSS - HWF为0.73,PSS - Friends和PSS - HCPs均为0.92)。

结论

开发了一个具有四个独立子量表的经过文化适应且可靠的韩语版问卷。需要对韩国版PSS进行进一步评估,这将有助于开发文化适应且量身定制的干预措施。

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Day-to-Day Decision Making by Adolescents and Young Adults with Cancer.青少年和青年癌症患者的日常决策。
J Pediatr Hematol Oncol Nurs. 2022 Sep-Oct;39(5):290-303. doi: 10.1177/27527530211068718. Epub 2022 Jan 15.

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