Yoong Jaclyn, MacPhail Aleece, Trytel Gael, Rajendram Prashanti Yalini, Winbolt Margaret, Ibrahim Joseph E
Monash Health, Department of Supportive and Palliative Care, 246 Clayton Road, Clayton, Vic. 3168, Australia. Email.
Queen Elizabeth Centre, Ballarat Health Services, 102 Ascot Street Sth, Ballarat, Vic. 3350, Australia. Email.
Aust Health Rev. 2017 Oct;41(5):519-526. doi: 10.1071/AH16116.
Objective Limitation of Medical Treatment (LMT) forms are an essential element of end-of-life care. Decision making around LMT is complex and often involves patients with dementia. Despite the complexity, junior doctors frequently play a central role in completing LMT forms. The present study sought perspectives from a range of stakeholders (hospital clinicians, medical education personnel, legal and advocacy staff) about junior doctors' roles in completing LMT forms in general and for patients with dementia. Methods Qualitative data were gathered in semi-structured interviews (SSI) and theoretical concepts were explored in roundtable discussion (RD). Participants were recruited through purposive and convenience sampling drawing on healthcare and legal personnel employed in the public hospital and aged care systems, selected from major metropolitan hospitals, healthcare and legal professional bodies and advocacy organisations in Victoria, Australia. The contents of the SSIs and RD were subject to thematic analysis using a framework approach. Data were indexed according to the topics established in the study aim; categories were systematically scrutinised, from which key themes were distilled. Results Stakeholders reported that completing LMT forms was difficult for junior doctors because of a lack of medical and legal knowledge, as well as clinical inexperience and inadequate training. Healthcare organisations (HCOs) either lacked policies about the role of junior doctors or had practices that were discordant with policy. In this process, there were substantial gaps pertaining to patients with dementia. Recommendations made by the study participants included the provision of supervised clinical exposure and additional training for junior doctors, strengthening HCO policies and explicit consideration of the needs of patients with dementia. Conclusions LMT forms should be designed for clarity and consistency across HCOs. Enhancing patient care requires appropriate and sensitive completion of LMT. Relevant HCO policy and clinical practice changes are discussed herein, and recommendations are made for junior doctors in this arena, specifically in the context of patients with dementia. What is known about the topic? Junior doctors continue to play a central role in LMT orders, a highly complex decision-making task that they are poorly prepared to complete. LMT decision making in Australia's aging population and for people with dementia is especially challenging. What does this paper add? A broad range of stakeholders, including hospital clinicians, medical education personnel and legal and advocacy staff, identified ongoing substantial gaps in education and training of junior doctors (despite what is already known in the literature). Furthermore, LMT decision making for patients with dementia is not explicitly considered in policy of practice. What are the implications for practitioners? Current policy and practice are not at the desired level to deliver appropriate end-of-life care with regard to LMT orders, especially for patients with dementia. Greater involvement of executives and senior clinicians is required to improve both practice at the bed side and the training and support of junior doctors, as well as creating more robust policy.
目的 医疗救治限制(LMT)表格是临终关怀的重要组成部分。围绕LMT的决策很复杂,且往往涉及痴呆症患者。尽管复杂,但初级医生在填写LMT表格方面经常发挥核心作用。本研究旨在从一系列利益相关者(医院临床医生、医学教育人员、法律及宣传人员)那里了解初级医生在一般情况下以及针对痴呆症患者填写LMT表格时所扮演的角色。方法 通过半结构化访谈(SSI)收集定性数据,并在圆桌讨论(RD)中探讨理论概念。通过目的抽样和便利抽样招募参与者,抽取公立医院和老年护理系统中 employed的医疗保健和法律人员,这些人员选自澳大利亚维多利亚州的主要都市医院、医疗保健和法律专业团体以及宣传组织。SSI和RD的内容采用框架方法进行主题分析。数据根据研究目的中确定的主题进行索引;对类别进行系统审查,从中提炼出关键主题。结果 利益相关者报告称,由于缺乏医学和法律知识、临床经验不足以及培训不够,初级医生填写LMT表格很困难。医疗保健组织(HCOs)要么缺乏关于初级医生角色的政策,要么其做法与政策不一致。在此过程中,与痴呆症患者相关的差距很大。研究参与者提出的建议包括为初级医生提供有监督的临床实习机会和额外培训,加强HCO政策,并明确考虑痴呆症患者的需求。结论 LMT表格的设计应在各HCOs之间保持清晰和一致。加强患者护理需要以适当且敏感的方式填写LMT。本文讨论了相关HCO政策和临床实践的变化,并针对这一领域的初级医生提出了建议,特别是在痴呆症患者的背景下。关于该主题已知的情况是什么?初级医生在LMT医嘱方面继续发挥核心作用,这是一项高度复杂的决策任务,他们对此准备不足。在澳大利亚老龄化人口以及痴呆症患者中进行LMT决策尤其具有挑战性。本文补充了什么?包括医院临床医生、医学教育人员以及法律和宣传人员在内的广泛利益相关者指出,初级医生的教育和培训存在持续且严重的差距(尽管文献中已有相关记载)。此外,实践政策中未明确考虑针对痴呆症患者的LMT决策。对从业者有何影响?就LMT医嘱而言,当前的政策和实践未达到提供适当临终关怀的理想水平,尤其是对于痴呆症患者。需要行政人员和资深临床医生更多地参与,以改善床边实践以及对初级医生的培训和支持,并制定更完善的政策。