展望变革:共同制定参与研究的模式(创新实践)。

Visioning change: Co-producing a model of involvement and engagement in research (Innovative Practice).

机构信息

Division of Nursing, Midwifery and Social Work, University of Manchester, UK.

Greater Manchester West Mental Health NHS Foundation Trust, UK.

出版信息

Dementia (London). 2019 Oct-Nov;18(7-8):3165-3172. doi: 10.1177/1471301216674559. Epub 2016 Oct 16.

Abstract

The involvement of people living with dementia in research has traditionally been located in the realms of 'subject' or 'participant'. However, there has been an increase in demand for greater transparency by academic bidding teams (particularly within the UK) in demonstrating how people with a lived experience have been and will be involved in the research process. Located within the Economic and Social Research Council/National Institute for Health Research (ESRC/NIHR)-funded Neighbourhoods and Dementia Study (2014-2019), led by The University of Manchester (UK), this paper outlines the development of the CO-researcher INvolvement and Engagement in Dementia (COINED) Model, which was co-produced alongside three independent groups of people living with dementia: Open Doors, the Scottish Dementia Working Group and EDUCATE.

摘要

参与痴呆症研究的人传统上被定位为“主体”或“参与者”。然而,学术投标团队(特别是在英国)要求提高透明度的呼声越来越高,他们希望展示有过生活体验的人是如何以及将如何参与研究过程的。该研究由曼彻斯特大学(英国)领导,隶属于经济和社会研究理事会/国家卫生研究院(ESRC/NIHR)资助的邻里与痴呆症研究(2014-2019 年),本文概述了共同研究员参与和投入痴呆症(COINED)模型的发展,该模型是与三组独立的痴呆症患者共同制作的:Open Doors、苏格兰痴呆症工作组和 EDUCATE。

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