Kaul Sapna, Smits-Seemann Rochelle R, Zamora Eduardo R, Spraker-Perlman Holly, Boyle Kevin J, Kirchhoff Anne C
1 Department of Preventive Medicine and Community Health, University of Texas Medical Branch , Galveston, Texas.
2 Huntsman Cancer Institute, University of Utah , Salt Lake City, Utah.
J Adolesc Young Adult Oncol. 2017 Mar;6(1):127-133. doi: 10.1089/jayao.2016.0054. Epub 2016 Oct 21.
Examine whether survivors of adolescent and young adult (AYA) cancer value recommended post-treatment care using focus groups and a willingness to pay (WTP) survey. WTP, a measure of value, indicates the dollar amount individuals are willing to pay to use a service.
Participants were recruited through the Utah Cancer Registry. N = 28 survivors diagnosed with cancer at ages 15-39 and currently aged ≥18 participated in focus groups, and N = 4 in phone interviews (participation rate = 50%). All participants responded to a demographic survey and WTP questions based on one-time and monthly payments for annual visits. Focus group participants responded to an open-ended question on the value of follow-up care. Interval regressions identified factors associated with WTP. Qualitative analysis summarized themes for the open-ended question.
Focus group participants reported valuing follow-up care as it brings peace of mind and helps them manage their health. Yet, 38% reported not having a cancer-related visit in the previous year. Only 27% and 43% of survivors agreed to pay any one-time and monthly payments, respectively. The monthly payment mean WTP was $41 (95% confidence interval [CI]: 31-84), equating to $494 annually, which is greater than the mean WTP for one-time payment ($362, 95% CI: 293-432, p < 0.001), suggesting that survivors may prefer monthly payments. Several factors, including being female and in better health, predicted higher WTP.
Many AYA cancer survivors report not visiting their doctors annually for post-treatment care despite verbally valuing care. Models that demonstrate high quality and distribute costs over time should be evaluated to encourage survivors to receive recommended care.
通过焦点小组和支付意愿（WTP）调查，研究青少年和青年（AYA）癌症幸存者是否重视推荐的治疗后护理。支付意愿是一种价值衡量指标，表明个人为使用某项服务愿意支付的金额。
通过犹他州癌症登记处招募参与者。N = 28名在15 - 39岁时被诊断患有癌症且目前年龄≥18岁的幸存者参加了焦点小组，N = 4名参加了电话访谈（参与率 = 50%）。所有参与者都回答了一份人口统计学调查问卷以及基于年度就诊的一次性和月度支付的支付意愿问题。焦点小组参与者回答了关于后续护理价值的开放性问题。区间回归确定了与支付意愿相关的因素。定性分析总结了开放性问题的主题。
焦点小组参与者表示重视后续护理，因为它能带来安心感并帮助他们管理健康。然而，38%的人报告上一年没有进行与癌症相关的就诊。分别只有27%和43%的幸存者同意支付任何一次性和月度费用。月度支付的平均支付意愿为41美元（95%置信区间[CI]：31 - 84），相当于每年494美元，这高于一次性支付的平均支付意愿（362美元，95% CI：293 - 432，p < 0.001），表明幸存者可能更喜欢月度支付。包括女性和健康状况较好在内的几个因素预测了更高的支付意愿。
许多AYA癌症幸存者尽管口头上重视护理，但报告称没有每年去看医生进行治疗后护理。应评估展示高质量并随时间分摊成本的模式，以鼓励幸存者接受推荐的护理。
