a Division of Pediatric Neuropsychology , Children's National Health System.
b Department of Child and Adolescent Psychiatry , VU University Medical Center.
J Clin Child Adolesc Psychol. 2018 Jan-Feb;47(1):105-115. doi: 10.1080/15374416.2016.1228462. Epub 2016 Oct 24.
Evidence indicates an overrepresentation of youth with co-occurring autism spectrum disorders (ASD) and gender dysphoria (GD). The clinical assessment and treatment of adolescents with this co-occurrence is often complex, related to the developmental aspects of ASD. There are no guidelines for clinical care when ASD and GD co-occur; however, there are clinicians and researchers experienced in this co-occurrence. This study develops initial clinical consensus guidelines for the assessment and care of adolescents with co-occurring ASD and GD, from the best clinical practices of current experts in the field. Expert participants were identified through a comprehensive international search process and invited to participate in a two-stage Delphi procedure to form clinical consensus statements. The Delphi Method is a well-studied research methodology for obtaining consensus among experts to define appropriate clinical care. Of 30 potential experts identified, 22 met criteria as expert in co-occurring ASD and GD youth and participated. Textual data divided into the following data nodes: guidelines for assessment; guidelines for treatment; six primary clinical/psychosocial challenges: social functioning, medical treatments and medical safety, risk of victimization/safety, school, and transition to adulthood issues (i.e., employment and romantic relationships). With a cutoff of 75% consensus for inclusion, identified experts produced a set of initial guidelines for clinical care. Primary themes include the importance of assessment for GD in ASD, and vice versa, as well as an extended diagnostic period, often with overlap/blurring of treatment and assessment.
有证据表明,同时患有自闭症谱系障碍(ASD)和性别焦虑症(GD)的年轻人比例过高。对同时患有这两种疾病的青少年进行临床评估和治疗通常很复杂,这与 ASD 的发展方面有关。当 ASD 和 GD 同时发生时,没有临床护理的指导方针;然而,有一些临床医生和研究人员在这方面有经验。本研究从该领域当前专家的最佳临床实践中,为评估和护理同时患有 ASD 和 GD 的青少年制定了初步的临床共识指南。通过全面的国际搜索过程确定了专家参与者,并邀请他们参加两阶段德尔菲程序,以形成临床共识声明。德尔菲法是一种经过充分研究的研究方法,用于在专家中获得共识,以定义适当的临床护理。在确定的 30 名潜在专家中,有 22 名符合同时患有 ASD 和 GD 青少年专家的标准并参与了研究。文本数据分为以下数据节点:评估指南;治疗指南;六个主要的临床/社会心理挑战:社交功能、医疗治疗和医疗安全、受害/安全风险、学校和成年过渡问题(即就业和恋爱关系)。通过设定 75%的共识纳入标准,确定的专家制定了一套初步的临床护理指南。主要主题包括在 ASD 中评估 GD 的重要性,反之亦然,以及延长诊断期,治疗和评估通常重叠/模糊。