家庭成员参与早期精神病专科护理。
Family member engagement with early psychosis specialty care.
作者信息
Lucksted Alicia, Stevenson Jennifer, Nossel Ilana, Drapalski Amy, Piscitelli Sarah, Dixon Lisa B
机构信息
Department of Psychiatry, University of Maryland Medical School, Baltimore, Maryland.
Veterans Administration VISN-5 Mental Illness Research Education and Clinical Center, Baltimore, Maryland.
出版信息
Early Interv Psychiatry. 2018 Oct;12(5):922-927. doi: 10.1111/eip.12403. Epub 2016 Nov 9.
BACKGROUND
Family members of individuals with early psychosis (EP) play critical roles in their engagement with EP services, but family member experiences of those roles are insufficiently understood.
METHODS
We conducted semi-structured interviews with 18 family members of individuals enrolled in EP services during the Recovery After an Initial Schizophrenia Episode-Implementation Evaluation Study (RAISE-IES study), to better understand their experiences engaging with EP specialty care and their roles in client engagement in services.
RESULTS
Family members described diverse experiences with the interplay among distress regarding their loved one's illness, uncertainty engaging with programme staff and highly valued facets of the clinical programme. These included ongoing family outreach and support, frequent communication from staff, programme flexibility and individualization of care. They also described varied and stressful complexities involved in providing practical assistance and encouragement to support their loved one's engagement in care. Competing responsibilities, time and resource limitations, and the intricacy of providing support while fostering autonomy impacted their roles and experiences.
CONCLUSIONS
Given key family roles for most EP clients, understanding family members' highly individual experiences and responding to them in tailored ways is necessary to best support families in helping their loved ones engage in care and recovery as well as navigate their own worry and stress. Recommendations for engaging and supporting family members are highlighted.
背景
早期精神病（EP）患者的家庭成员在其接受EP服务过程中发挥着关键作用，但对家庭成员在这些角色中的体验了解不足。
方法
在首次精神分裂症发作后康复-实施评估研究（RAISE-IES研究）期间，我们对18名参与EP服务患者的家庭成员进行了半结构化访谈，以更好地了解他们在接受EP专科护理方面的经历以及他们在患者参与服务过程中的角色。
结果
家庭成员描述了在亲人患病的痛苦、与项目工作人员接触的不确定性以及临床项目的高度重视方面之间相互作用的不同经历。这些包括持续的家庭外展和支持、工作人员的频繁沟通、项目灵活性和个性化护理。他们还描述了在提供实际帮助和鼓励以支持亲人参与护理过程中涉及的各种压力和复杂性。相互竞争的责任、时间和资源限制，以及在促进自主性的同时提供支持的复杂性影响了他们的角色和经历。
结论
鉴于大多数EP患者的家庭角色关键，了解家庭成员高度个性化的经历并以量身定制的方式做出回应，对于最佳支持家庭帮助其亲人参与护理和康复以及应对自身的担忧和压力是必要的。强调了吸引和支持家庭成员的建议。
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