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“到目前为止,一直是在选择我想要的或能够应对的副作用”:关于艾滋病毒感染者艾滋病毒治疗副作用的扎根理论

"So far it's been choosing which side effects I want or I can deal with": A grounded theory of HIV treatment side effects among people living with HIV.

作者信息

Gagnon Marilou, Holmes Dave

机构信息

Associate Professor, University of Ottawa, Faculty of Health Sciences, School of Nursing, 451 Smyth Road, Ottawa, Ontario, K1H 8M5, Canada.

Professor, University of Ottawa, Faculty of Health Sciences, School of Nursing.

出版信息

Aporia. 2016 Jan 1;8(1):19-40.

Abstract

Despite the availability of new antiretroviral drugs and the simplification of treatment options, side effects continue to affect people living with HIV. In this paper, we present the findings of a grounded theory study designed to gain a critical understanding of the experience of side effects. Three main categories emerged from the data: the side effects, the experience, and the connections. The first category suggests that we need to change how we think about side effects in order to take into account the context in which they are experienced as well as the types and nature of side effects. The second category puts forward the idea that the experience of side effects is composed of three interrelated processes: becoming with, living with, and dealing with. Finally, the third category points to new connections that are formed with people, things and systems in the presence of side effects.

摘要

尽管有了新的抗逆转录病毒药物,治疗方案也得到了简化,但副作用仍然影响着艾滋病毒感染者。在本文中,我们展示了一项扎根理论研究的结果,该研究旨在深入了解副作用的经历。数据中出现了三个主要类别:副作用、经历和联系。第一类表明,我们需要改变对副作用的思考方式,以便考虑到副作用产生的背景以及副作用的类型和性质。第二类提出,副作用的经历由三个相互关联的过程组成:与之共存、忍受和应对。最后,第三类指出了在出现副作用的情况下与人和事物及系统形成的新联系。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0afa/5112014/fa77bc011249/nihms5882f1.jpg

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