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叙事冲突、社会文化压力与痴呆症:对人格关系基础的重新思考

Narrative collisions, sociocultural pressures and dementia: the relational basis of personhood reconsidered.

作者信息

Tolhurst Edward, Weicht Bernhard, Kingston Paul

机构信息

Faculty of Health Sciences, Staffordshire University, Stafford, UK.

Department of Sociology, University of Innsbruck, Innsbruck, Austria.

出版信息

Sociol Health Illn. 2017 Feb;39(2):212-226. doi: 10.1111/1467-9566.12523.

Abstract

The concept of personhood developed by Tom Kitwood highlights that the experience of dementia has relational dimensions that transcend the neurodegenerative impacts of the condition. This relational focus, however, has been narrowly conceptualised, with the impact of broader sociocultural factors on experience underplayed. The empirical exploration of interaction also requires reinforcement: a tendency for dyadic studies to portray findings in an individualised format hinders the interrogation of interpersonal negotiations. This article draws upon qualitative research that employed a joint interview approach, interviewing men with dementia and their spousal carers together. The focus on a dyadic case study from this research enables methodical exploration of the experience of living with dementia. This is realised by considering the socially-framed perspective of each person, and then how their perspectives are interwoven within interactional exchanges. This provides a platform for the evaluation of the current decontextualised notion of personhood and its implications. It is concluded that a sociologically-informed perspective can help to reinforce the academic understanding of personhood.

摘要

汤姆·基特伍德提出的人格概念强调,痴呆症患者的经历具有关系维度,超越了该病症的神经退行性影响。然而,这种对关系的关注在概念上较为狭隘,更广泛的社会文化因素对经历的影响未得到充分重视。对互动的实证探索也需要加强:二元研究倾向于以个体化形式呈现研究结果,这阻碍了对人际协商的审视。本文借鉴了定性研究,该研究采用联合访谈方法,同时采访患有痴呆症的男性及其配偶照顾者。基于此项研究的二元案例研究重点,能够系统地探究痴呆症患者的生活体验。这通过考虑每个人的社会框架视角,以及他们的视角如何在互动交流中相互交织来实现。这为评估当前脱离情境的人格概念及其影响提供了一个平台。得出的结论是,具有社会学依据的视角有助于加强对人格的学术理解。

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