University of British Columbia School of Nursing, Vancouver, BC, Canada.
J Fam Nurs. 2013 Aug;19(3):348-74. doi: 10.1177/1074840713486727. Epub 2013 Apr 18.
In this article we draw from a larger study to examine experiences of two men and their families as they negotiate changing patterns of everyday activity in the months after receiving a diagnosis of dementia. We conducted in-depth interpretive phenomenological analysis of interview and observational data that were gathered from the men and various members of their families (n = 7) over a period several months. Findings are presented as three themes: The best kind of man (highlighting participants' historical positioning); It's a little different now (recognizing challenges posed by the dementia); and You have to do something (showing how the men and their families responded to and accommodated these challenges). We discuss these findings in terms of how everyday activity is not only important for supporting personhood in dementia, but it also contributes to sustaining family identity, and does so in a way that is deeply influenced by gender and masculinity.
在本文中，我们从一项更大的研究中汲取素材，探讨了两位男性及其家人在被诊断出患有痴呆症后的几个月里，如何应对日常活动模式变化的经历。我们对从男性及其家庭成员（n=7）那里收集的访谈和观察数据进行了深入的解释性现象学分析。研究结果呈现为三个主题：最好的男人（突出参与者的历史定位）；现在有点不同了（认识到痴呆症带来的挑战）；你必须做点什么（展示男性及其家人如何应对和适应这些挑战）。我们根据日常活动不仅对支持痴呆症患者的人格非常重要，而且对维持家庭身份也很重要，并以深受性别和男子气概影响的方式来讨论这些发现。
