Asadullah Md, Kamath Ramachandra, Pattanshetty Sanjay, Andrews Teddy, Nair N Sreekumaran
a Department of Public Health , Manipal University , Manipal , India.
b Department of Statistics , Manipal University , Manipal , India.
AIDS Care. 2017 Jun;29(6):787-792. doi: 10.1080/09540121.2016.1263720. Epub 2016 Dec 4.
Caregivers of children living with HIV/AIDS (CLWHA) face unique challenges due to disease-related stigma and discrimination, isolation from society, financial constraints, grief and mortality of loved one. A descriptive cross-sectional study was conducted at Udupi ART centre to assess the caregiver burden, psychological distress and their associated factors among the caregivers of CLWHA in Udupi District. The convenience sampling technique was used to collect the data from 171 caregivers and analysed with the help of SPSS version 15.0. Majority of caregivers were female (64.9%) with mean age of 38.1 ± 9.6 years. About 64.3% caregivers were HIV-positive and 63.2% were biological parents of CLWHA. Mild-to-severe caregiver burden on Zarit Burden Inventory (ZBI) was reported among 84.8% of caregivers, and mild-to-severe psychological distress on General Health Questionnaire (GHQ-12) was reported among 49.7% caregivers. Relationship with child was found to be a significant predictor of caregiver burden as compared to other relatives/foster (P < 0.001). Relationship with child (P 0.004), Alcohol use (P 0.008) and Schooling of children (P 0.049) were reported as significant predictors of psychological distress. Study concludes that caregiver burden and psychological distress were high among caregivers of CLWHA. Psychological problems of caregivers need to be addressed and integrated along with the clinical care of HIV-infected children at ART centres.
感染艾滋病毒/艾滋病儿童（CLWHA）的照料者面临着独特的挑战，这些挑战源于与疾病相关的耻辱感和歧视、与社会隔离、经济限制、亲人的离世之痛。在乌度皮抗逆转录病毒治疗中心开展了一项描述性横断面研究，以评估乌度皮地区感染艾滋病毒/艾滋病儿童照料者的照料负担、心理困扰及其相关因素。采用便利抽样技术从171名照料者那里收集数据，并借助SPSS 15.0版软件进行分析。大多数照料者为女性（64.9%），平均年龄为38.1 ± 9.6岁。约64.3%的照料者艾滋病毒检测呈阳性，63.2%是感染艾滋病毒/艾滋病儿童的亲生父母。84.8%的照料者报告在扎里特照料负担量表（ZBI）上存在轻度至重度的照料负担，49.7%的照料者报告在一般健康问卷（GHQ - 12）上存在轻度至重度的心理困扰。与其他亲属/寄养亲属相比，与孩子的关系被发现是照料负担的一个重要预测因素（P < 0.001）。与孩子的关系（P = 0.004）、饮酒情况（P = 0.008）和孩子的受教育程度（P = 0.049）被报告为心理困扰的重要预测因素。研究得出结论，感染艾滋病毒/艾滋病儿童的照料者中照料负担和心理困扰程度较高。在抗逆转录病毒治疗中心，需要在对感染艾滋病毒儿童进行临床护理的同时，关注并解决照料者的心理问题。
