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痴呆症患者的姑息治疗。

Palliative care for dementia patients.

作者信息

Hirot France

机构信息

Service de psychiatrie, CHRU de Lille, Lille, France.

出版信息

Geriatr Psychol Neuropsychiatr Vieil. 2016 Dec 1;14(4):447-453. doi: 10.1684/pnv.2016.0641.

Abstract

Dementia is a life-limiting disease without curative treatments but the data suggest that advanced dementia is not viewed as a terminal diagnosis by physicians. Although symptoms of dementia and cancer patients are similar, palliative care is less frequently proposed for dementia patients. However, professionals and family members of demented patients strongly favor comfort care for end-stage dementia. To improve the patients' relief near the end of life, advance care planning with patients and their proxies should be encouraged. It should start as soon as possible so that the patient can still be actively involved and his preferences, values, needs and beliefs elicited. Written advance directives or enrollment in hospice care are associated with quality of dying. Yet caregivers are sometimes concerned about applying palliative care too early or that advance plans would be invalidated if relatives or patients changed their mind. Therefore, general practitioners and palliative care specialists need to better collaborate to provide greater information and improve comfort and quality of life of dementia patients.

摘要

痴呆症是一种无法治愈的、危及生命的疾病,但数据表明,医生并不将晚期痴呆症视为终末期诊断。尽管痴呆症患者和癌症患者的症状相似,但为痴呆症患者提供姑息治疗的情况却较少。然而,痴呆症患者的专业护理人员和家庭成员强烈支持为终末期痴呆症患者提供舒适护理。为了在患者生命末期改善其缓解状况,应鼓励与患者及其代理人进行预先护理规划。这种规划应尽早开始,以便患者仍能积极参与,并了解其偏好、价值观、需求和信念。书面预先指令或加入临终关怀与死亡质量相关。然而,护理人员有时担心过早应用姑息治疗,或者担心如果亲属或患者改变主意,预先计划将失效。因此,全科医生和姑息治疗专家需要更好地合作,以提供更多信息,并改善痴呆症患者的舒适度和生活质量。

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