父母对自闭症谱系障碍幼儿重复行为管理干预措施的看法：一项定性研究。
Parents' Opinions about an Intervention to Manage Repetitive Behaviours in Young Children with Autism Spectrum Disorder: A Qualitative Study.
作者信息
Hodgson Anna R, Grahame Victoria, Garland Deborah, Gaultier Fiona, Lecouturier Jan, Le Couteur Ann
机构信息
Institute of Neuroscience, Newcastle University, Newcastle upon Tyne, UK.
Northumberland, Tyne and Wear NHS Foundation Trust, Newcastle upon Tyne, UK.
出版信息
J Appl Res Intellect Disabil. 2018 Mar;31 Suppl 2:165-178. doi: 10.1111/jar.12317. Epub 2016 Dec 19.
BACKGROUND
Early intervention for autism spectrum disorder (ASD) tends to focus on enhancing social communication skills. We report data collected via focus group discussions as part of a feasibility and acceptability pilot randomized controlled trial (RCT) about a new parent group intervention to manage restricted and repetitive behaviours (RRB) in young children with ASD.
METHODS
The focus groups were led by two independent facilitators and followed a semi-structured topic guide with the aim of considering three key topics: experiences of participating in a RCT, opinions about the intervention and the impact of the intervention on the participants, their children and the family.
RESULTS
Fourteen participants attended the focus groups. Most participants reported that they had little knowledge of RRB before attending the intervention and that it had had a positive impact on them, their children and their family.
CONCLUSION
The findings support the view that there is an unmet need for a parent-mediated intervention focusing on RRB.
背景
自闭症谱系障碍（ASD）的早期干预往往侧重于提高社交沟通技能。我们报告了通过焦点小组讨论收集的数据，这些数据是一项可行性和可接受性试点随机对照试验（RCT）的一部分，该试验旨在探讨一种新的家长小组干预措施，以管理患有ASD的幼儿的受限和重复行为（RRB）。
方法
焦点小组由两名独立主持人主持，并遵循半结构化主题指南，旨在探讨三个关键主题：参与RCT的经历、对干预措施的看法以及干预措施对参与者、他们的孩子和家庭的影响。
结果
14名参与者参加了焦点小组。大多数参与者报告说，在参加干预之前，他们对RRB了解甚少，并且该干预对他们自己、他们的孩子和家庭产生了积极影响。
结论
研究结果支持这样一种观点，即针对RRB的家长介导干预存在未满足的需求。
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