化脓性汗腺炎手术后的患者满意度和生活质量

Patient Satisfaction and Quality of Life Following Surgery for Hidradenitis Suppurativa.

作者信息

Kohorst John J, Baum Christian L, Otley Clark C, Roenigk Randall K, Pemberton John H, Dozois Eric J, Tran Nho V, Davis Mark D P

机构信息

*Mayo Medical School, Mayo Clinic College of Medicine, Rochester, Minnesota;†Department of Dermatology, Mayo Clinic, Rochester, Minnesota;‡Division of Colon and Rectal Surgery, Mayo Clinic, Rochester, Minnesota;§Division of Plastic and Reconstructive Surgery, Mayo Clinic, Rochester, Minnesota.

出版信息

Dermatol Surg. 2017 Jan;43(1):125-133. doi: 10.1097/DSS.0000000000000942.

DOI:10.1097/DSS.0000000000000942

PMID:28027202

Abstract

BACKGROUND

Hidradenitis suppurativa (HS) is a progressive, recurrent inflammatory disorder.

OBJECTIVE

To assess long-term satisfaction and postoperative perceptions among patients who underwent surgical management of HS.

MATERIALS AND METHODS

A questionnaire was mailed to 499 HS surgical patients to assess surgical outcome, satisfaction, and quality of life.

RESULTS

Of the 499 questionnaires mailed, 113 were returned (22.6% response rate) and 2 were excluded for redundancy. Of the 111 respondents, 65 (58.6%) were female, 91 (82.0%) had Hurley Stage III disease, 88 (79.3%) were treated with excision and 23 (20.7%) with unroofing, 45 (40.5%) had perianal or perineal disease, and 41 (36.9%) had axillary disease. Most patients were satisfied or very satisfied with their surgical results (84.7%; 94 of 111), were glad they underwent surgery (96.3%; 105 of 109), and would recommend surgery to a friend or relative (82.6%; 90 of 109). Most patients were satisfied or very satisfied with the appearance of their healed wound (62.4%; 68 of 109). Retrospective mean quality of life increased significantly from 5 preoperatively to 8.4 postoperatively (p < .001).

CONCLUSION

Hidradenitis suppurativa surgical management was well regarded by patients and should be considered by future patients to limit the morbidity of HS.

摘要

背景

化脓性汗腺炎（HS）是一种进行性、复发性炎症性疾病。

目的

评估接受HS手术治疗患者的长期满意度和术后感受。

材料与方法

向499例接受HS手术的患者邮寄问卷，以评估手术结果、满意度和生活质量。

结果

在邮寄的499份问卷中，113份被退回（回复率为22.6%），2份因重复而被排除。在111名受访者中，65名（58.6%）为女性，91名（82.0%）患有Hurley III期疾病，88名（79.3%）接受了切除术，23名（20.7%）接受了造口术，45名（40.5%）患有肛周或会阴疾病，41名（36.9%）患有腋窝疾病。大多数患者对手术结果满意或非常满意（84.7%；111名中的94名），很高兴接受了手术（96.3%；109名中的105名），并会向朋友或亲戚推荐手术（82.6%；109名中的90名）。大多数患者对愈合伤口的外观满意或非常满意（62.4%；109名中的68名）。回顾性平均生活质量从术前的5分显著提高到术后的8.4分（p <.001）。