Suppr超能文献

日本知情同意的动态轴。

Dynamic axes of informed consent in Japan.

作者信息

Specker Sullivan Laura

机构信息

University of Washington, Box 37, 1414 NE 42nd Street, Seattle, WA 98105-6271, United States; Department of Philosophy, University of Washington, Seattle, WA, United States; University of British Columbia, Canada.

出版信息

Soc Sci Med. 2017 Feb;174:159-168. doi: 10.1016/j.socscimed.2016.12.031. Epub 2016 Dec 23.

Abstract

Scholarship in cross-cultural bioethics routinely frames Japanese informed consent in contrast to informed consent in North America. This contrastive analysis foregrounds cancer diagnosis disclosure and physician paternalism as unique aspects of Japanese informed consent that deviate from American practices. Drawing on in-depth interviews with 15 Japanese medical professionals obtained during fieldwork in Japan from 2013 to 15, this article complicates the informed consent discourse beyond East-West comparisons premised on Anglo-American ethical frameworks. It expands professional perspectives to include nurses, medical social workers, clinical psychologists, and ethicists and it addresses informed consent for a broad range of conditions in addition to cancer. The results suggest that division of affective labor is an under-theorized dimension of informed consent that is perceived as at odds with principled demands for universal informed consent. These practical tensions are conceptualized as cultural differences, with Japan identified in terms of omakase as practical and supportive and the United States identified in terms of jiko kettei as principled and self-determining. These results have implications for the methodology of cross-cultural bioethics as well as for theories and practices of informed consent in both Japan and the United States. I conclude that responsible cross-cultural work in bioethics must begin from the ground up, incorporating all relevant stakeholder perspectives, attitudes, and experiences.

摘要

跨文化生物伦理学领域的学术研究通常将日本的知情同意与北美的知情同意进行对比。这种对比分析突出了癌症诊断告知和医生家长主义,将其作为日本知情同意中不同于美国做法的独特方面。本文基于2013年至2015年在日本实地调研期间对15名日本医学专业人员进行的深入访谈,使基于英美伦理框架的东西方比较之外的知情同意话语更加复杂。它拓展了专业视角,将护士、医学社会工作者、临床心理学家和伦理学家纳入其中,并且除了癌症之外,还探讨了广泛情形下的知情同意。研究结果表明,情感劳动分工是知情同意中一个理论阐释不足的维度,被认为与普遍知情同意的原则性要求相悖。这些实际矛盾被概念化为文化差异,日本被视为基于“委托”(omakase)是实际且给予支持的,而美国被视为基于“自主决定”(jiko kettei)是有原则且自主的。这些结果对跨文化生物伦理学的方法论以及日本和美国知情同意的理论与实践均有启示。我得出结论,生物伦理学中负责任的跨文化研究必须从头开始,纳入所有相关利益攸关方的观点、态度和经验。

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验