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定义美国的癌症幸存者、他们的需求以及对生存健康护理的看法。

Defining cancer survivors, their needs, and perspectives on survivorship health care in the USA.

机构信息

University of North Carolina School of Nursing, University of North Carolina, Chapel Hill, NC, USA; University of North Carolina Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, NC, USA.

National Coalition for Cancer Survivorship, Silver Spring, MD, USA.

出版信息

Lancet Oncol. 2017 Jan;18(1):e11-e18. doi: 10.1016/S1470-2045(16)30573-3.

Abstract

More people are living after a diagnosis of cancer than ever before and now account for around 5% of the US population. The specialty of cancer survivorship has been developing and growing since the mid-1980s, but the term survivor is open to debate by people living with cancer and those caring for them. Regardless of the term used, many ongoing physical, psychological, and social needs affect quality of life for people who are living with cancer and those who have survived the disease. Survivors prefer to have these needs addressed by their oncologist but also want their primary care provider to have a role. However, survivors also believe there are communication and coordination barriers between care providers. The existing method for delivering cancer care is becoming unsustainable and is not adequately configured to deliver high-quality cancer care to this growing population in the USA, especially when confronted with projected health-care shortages by 2020. In this Series paper, we define the term cancer survivor, discuss survivors' ongoing needs and preferences for care over time, and consider the implications for delivering coordinated cancer care in the USA.

摘要

现在比以往任何时候都有更多的人在被诊断出癌症后幸存下来,他们现在约占美国人口的 5%。自 20 世纪 80 年代中期以来,癌症生存者的专业领域一直在发展和壮大,但癌症患者和照顾他们的人对“幸存者”一词存在争议。无论使用何种术语,许多持续存在的身体、心理和社会需求都会影响癌症患者及其已康复患者的生活质量。幸存者希望他们的肿瘤医生能够解决这些需求,但也希望他们的初级保健提供者能够发挥作用。然而,幸存者也认为医疗服务提供者之间存在沟通和协调障碍。现有的癌症治疗方法已经变得不可持续,并且不能充分配置为美国不断增长的癌症患者人群提供高质量的癌症护理,尤其是在面临 2020 年预计的医疗保健短缺时。在本系列论文中,我们定义了癌症幸存者一词,讨论了幸存者随着时间的推移对护理的持续需求和偏好,并考虑了在美国提供协调癌症护理的影响。

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