Nayak Rahul, Shah Seema K
Bioethics. 2017 Feb;31(2):116-127. doi: 10.1111/bioe.12322.
According to prominent bioethics scholars and international guidelines, researchers and sponsors have obligations to ensure that the products of their research are reasonably available to research participants and their communities. In other words, the claim is that research is unethical unless it has local social value. In this article, we argue that the existing conception of reasonable availability should be replaced with a social value obligation that extends to the global poor (and not just research participants and host communities). To the extent the social value requirement has been understood as geographically constrained to the communities that host research and the countries that can afford the products of research, it has neglected to include the global poor as members of the relevant society. We argue that a new conception of social value obligations is needed for two reasons. First, duties of global beneficence give reason for researchers, sponsors, and institutions to take steps to make their products more widely accessible. Second, public commitments made by many institutions acknowledge and engender responsibilities to make the products of research more accessible to the global poor. Future research is needed to help researchers and sponsors discharge these obligations in ways that unlock their full potential.
根据著名的生物伦理学家和国际准则,研究人员和资助者有义务确保其研究成果能合理地提供给研究参与者及其所在社区。换句话说,有一种观点认为,除非研究具有当地社会价值,否则就是不道德的。在本文中,我们认为,现有的合理可得性概念应该被一种延伸至全球贫困人口(而不仅仅是研究参与者和东道社区)的社会价值义务所取代。就社会价值要求在地理上被限制于进行研究的社区以及有能力负担研究成果的国家而言,它忽略了将全球贫困人口纳入相关社会成员之中。我们认为需要一种新的社会价值义务概念,原因有二。其一,全球慈善义务促使研究人员、资助者和机构采取措施,使他们的研究成果能更广泛地被获取。其二,许多机构做出的公开承诺承认并产生了使研究成果更易于被全球贫困人口获取的责任。未来需要开展研究,以帮助研究人员和资助者履行这些义务,充分发挥其潜力。