Brown Julia E H, Dennis Simone
Department of Anthropology, Australian National University, AD Hope Building, Canberra, 2612, Australia.
Cult Med Psychiatry. 2017 Sep;41(3):368-381. doi: 10.1007/s11013-016-9517-4.
It is well recognised that antipsychotic treatments impact the whole body, not just the target area of the brain. For people with refractory schizophrenia on clozapine, the gold standard antipsychotic treatment in England and Australia, the separation of mental and physical regimes of health is particularly pronounced, resulting in multiple, compartmentalised treatment registers. Clinicians often focus on the mental health aspects of clozapine use, using physical indicators to determine whether treatment can continue. Our observations of 59 participants in England and Australia over 18 months revealed that patients did not observe this hierarchisation of mental treatments and physical outcomes. Patients often actively engaged in the management of their bodily symptoms, leading us to advance the figure of the active, rather than passive, patient. In our paper, we do not take the position that the facility for active management is a special one utilised only by these patients. We seek instead to draw attention to what is currently overlooked as an ordinary capacity to enact some sort of control over life, even under ostensibly confined and confining circumstances. We argue that clozapine-treated schizophrenia patients utilise the clinical dichotomy between mental and physical domains of health to rework what health means to them. This permits patients to actively manage their own phenomenological 'life projects' (Rapport, I am Dynamite: an Alternative Anthropology of Power, Routledge, London 2003), and forces us to reconsider the notion of clinical giveness of what health means. This making of one's own meanings of health may be critical to the maintenance of a sense of self.
人们普遍认识到,抗精神病药物治疗会影响全身,而不仅仅是大脑的目标区域。对于在英格兰和澳大利亚使用氯氮平这种金标准抗精神病药物治疗的难治性精神分裂症患者来说,精神健康和身体健康治疗体系的分离尤为明显,导致出现多个相互分隔的治疗记录。临床医生通常关注氯氮平使用的心理健康方面,利用身体指标来决定治疗是否可以继续。我们对英格兰和澳大利亚的59名参与者进行了18个月的观察,发现患者并未遵循这种精神治疗和身体结果的等级划分。患者常常积极参与自身身体症状的管理,这使我们提出了积极而非消极患者的形象。在我们的论文中,我们并不认为积极管理的能力是这些患者所特有的。相反,我们试图提请注意目前被忽视的一种普通能力,即即使在表面上受限和限制的情况下,也能对生活进行某种控制。我们认为,接受氯氮平治疗的精神分裂症患者利用健康在精神和身体领域的临床二分法来重新定义健康对他们的意义。这使患者能够积极管理自己的现象学“生活计划”(拉波特,《我是炸药:权力的另类人类学》,劳特利奇出版社,伦敦,2003年),并迫使我们重新思考健康意义的临床既定观念。这种对自身健康意义的构建可能对维持自我意识至关重要。