Ugalde Anna, Haynes Kerry, Boltong Anna, White Victoria, Krishnasamy Meinir, Schofield Penelope, Aranda Sanchia, Livingston Patricia
School of Nursing and Midwifery, Deakin University, Geelong, Victoria, Australia; Cancer Information and Support Service, Cancer Council Victoria, Melbourne, Victoria, Australia.
School of Nursing and Midwifery, Deakin University, Geelong, Victoria, Australia.
Patient Educ Couns. 2017 May;100(5):846-857. doi: 10.1016/j.pec.2016.12.009. Epub 2016 Dec 14.
People with cancer can experience psychological distress but do not always desire, or engage with, professional support to assist with managing distress. Interventions that are self-directed or guided by patients may hold promise as they allow patients to engage with interventions as they need. The objective of this review is to describe and appraise the evidence for effectiveness of self-guided interventions that aim to manage psychological distress in people with cancer.
A systematic search of Medline, PsychInfo and CINAHL identified 15 relevant papers, reporting on 14 studies.
Of the interventions, three studies comprised hard-copy workbooks, six studies used resource packs, four were online resources and one was a brief multimedia resource. One study was adequately powered and demonstrated a positive effect. Almost all interventions required some level of facilitation. Distressed participants may benefit more from interventions.
Self-guided interventions represent a potentially efficient way of delivering support for people affected by cancer, however evidence supporting them is lacking.
There is a need to generate evidence to understand the impact of self-guided interventions for: i) the ideal delivery point in the disease trajectory, ii) patient groups, iii) intervention content and iv) type and mode of delivery.
癌症患者可能会经历心理困扰，但并不总是希望或寻求专业支持来应对这些困扰。由患者自主引导或指导的干预措施可能具有前景，因为它们允许患者根据自身需求参与干预。本综述的目的是描述和评估旨在管理癌症患者心理困扰的自我引导干预措施有效性的证据。
对Medline、PsychInfo和CINAHL进行系统检索，共识别出15篇相关论文，报道了14项研究。
在这些干预措施中，三项研究采用纸质工作手册，六项研究使用资源包，四项是在线资源，一项是简短的多媒体资源。一项研究有足够的样本量并显示出积极效果。几乎所有干预措施都需要一定程度的引导。处于困扰状态的参与者可能从干预中获益更多。
自我引导干预措施是为癌症患者提供支持的一种潜在有效方式，但缺乏支持它们的证据。
有必要生成证据以了解自我引导干预措施对以下方面的影响：i）疾病轨迹中的理想干预时机，ii）患者群体，iii）干预内容，以及iv）干预的类型和方式。
