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一名3岁男孩因自残行为导致口腔出血

Oral Hemorrhage in a 3-year-old Boy Caused by Self-Mutilating Behavior.

作者信息

Uy Jenny Lyn Y, Lapeña José Florencio F

机构信息

Dr. Jenny Lyn Y. Uy, BS, MD. Department of Otorhinolaryngology, Philippine General Hospital, University of the Philippines Manila, Philippines.

Prof. Dr. José Florencio F. Lapeña, Jr., MA, MD. Department of Otorhinolaryngology, College of Medicine, Philippine General Hospital, University of the Philippines Manila, Philippines.

出版信息

Pak J Med Sci. 2016 Nov-Dec;32(6):1583-1585. doi: 10.12669/pjms.326.12088.

Abstract

A 3-year-old boy referred for persistent tongue bleeding was diagnosed with a rare self-mutilating disease that had also affected his lip and fingers. He underwent multiple odontectomy and partial glossectomy and continues to undergo behavior therapy and on-demand splints and restraints. He has stopped self-biting and has gained appetite and weight. Lesch-Nyhan Syndrome can cause significant morbidity including self-inflicted oral hemorrhage and emergent measures are not easily decided. The long-term management of its neurobehavioral symptoms is problematic and multidisciplinary, and health providers remain challenged to find the best treatment, prolong lifespan and improve quality of life within their respective contexts.

摘要

一名因持续性舌部出血前来就诊的3岁男孩被诊断患有一种罕见的自残性疾病,该疾病还影响了他的嘴唇和手指。他接受了多次牙齿切除术和部分舌切除术,目前仍在接受行为治疗,并按需使用夹板和约束装置。他已经停止了自我咬伤,食欲和体重也有所增加。莱施-尼汉综合征可导致严重的发病率,包括自伤性口腔出血,且紧急措施不易确定。其神经行为症状的长期管理存在问题,需要多学科协作,医疗服务提供者在各自的环境中寻找最佳治疗方法、延长寿命和提高生活质量方面仍然面临挑战。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/00a5/5216325/9cbca6e4022d/PJMS-32-1583-g001.jpg

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