DiNofia Amanda, Shafer Kate, Steacy Katarina, Sadak Karim Thomas
*The Children's Hospital of Philadelphia Division of Oncology, Philadelphia, PA †Department of Oncology, Children's National Medical Center, Washington, DC ‡GW Medical Faculty Associates, Division of Internal Medicine, Department of Medicine, Washington, DC §Children's Brain Tumor Foundation, New York, NY ∥Department of Radiation Oncology, University of Maryland Medical Center, Baltimore, MD ¶University of Minnesota Masonic Children's Hospital #University of Minnesota Masonic Cancer Center, Minneapolis, MN.
J Pediatr Hematol Oncol. 2017 Oct;39(7):e377-e380. doi: 10.1097/MPH.0000000000000765.
Most childhood cancer survivors need life-long care with specialized late-effects surveillance and screening. As these children age into adulthood, it is imperative to continue their survivor-focused care. To do so, health care systems must be prepared to care for this growing and aging population. This includes creating models of care that take into account the needs and desires of all key stakeholders: survivors, parents, pediatric providers, and adult providers. This clinical observation describes that parents desire comprehensive and highly accessible survivorship care that promotes survivor independence; yet, they also want to have a central role in their child's survivorship care.
大多数儿童癌症幸存者需要终身护理,并进行专门的迟发效应监测和筛查。随着这些儿童步入成年,继续以幸存者为中心的护理至关重要。要做到这一点,医疗保健系统必须做好准备,为这一不断增长且老龄化的人群提供护理。这包括创建护理模式,要考虑到所有关键利益相关者的需求和愿望:幸存者、父母、儿科医护人员和成人医护人员。这一临床观察表明,父母希望获得全面且极易获得的生存护理,以促进幸存者的独立;然而,他们也希望在孩子的生存护理中发挥核心作用。