Valent Francesca, Busolin Anna, Boscutti Giuliano
Servizio Epidemiologia e Flussi Informativi-Direzione Centrale Salute, Integrazione Sociosanitaria, Politiche Sociali e Famiglia-Regione Autonoma Friuli Venezia Giulia, Udine, Italy.
Struttura Complessa di Nefrologia e Dialisi-Azienda Sanitaria Universitaria Integrata di Trieste, Trieste, Italy.
J Ren Care. 2017 Jun;43(2):121-127. doi: 10.1111/jorc.12192. Epub 2017 Jan 18.
Disease registries are useful tools for public health planning, evaluating clinical practice and providing information on cohorts of patients.
The administrative databases of the regional health information system of Friuli Venezia Giulia, Italy were used to build a regional registry of the resident population in renal replacement therapy (including dialysis and renal transplantation), through an algorithm taking into account hospital discharge and outpatient ambulatory care data. The registry includes an anonymous univocal identifier, the start date for the replacement therapy and changes of status (haemodialysis, peritoneal dialysis, renal transplantation). Data from the registry were used to estimate incidence rate, prevalence and mortality of patients receiving renal replacement therapy in 2014. In addition, we described an example of how the registry can be used to assess the prevalence of selected comorbidities.
In Friuli Venezia Giulia in 2014, we estimated an incidence rate of renal replacement therapy of 166 per million inhabitants and a prevalence of 1,400 per million inhabitants. A total of 10% of the patients died in the study year. Hypertension, heart disease and diabetes mellitus were common co-morbidities.
The registry allows us to estimate the incidence rate and prevalence of renal replacement therapy and also to investigate specific issues regarding these patients through record linkage with other administrative health databases.
疾病登记是公共卫生规划、评估临床实践以及提供患者队列信息的有用工具。
利用意大利弗留利-威尼斯朱利亚地区卫生信息系统的行政数据库，通过一种考虑医院出院和门诊流动护理数据的算法，建立了一个肾脏替代治疗（包括透析和肾移植）常住人口的区域登记册。该登记册包括一个匿名的唯一标识符、替代治疗的开始日期以及状态变化（血液透析、腹膜透析、肾移植）。登记册中的数据用于估计2014年接受肾脏替代治疗患者的发病率、患病率和死亡率。此外，我们描述了一个如何利用该登记册评估选定合并症患病率的示例。
2014年在弗留利-威尼斯朱利亚，我们估计肾脏替代治疗的发病率为每百万居民166例，患病率为每百万居民1400例。在研究年度，共有10%的患者死亡。高血压、心脏病和糖尿病是常见的合并症。
该登记册使我们能够估计肾脏替代治疗的发病率和患病率，并通过与其他行政卫生数据库的记录链接来调查有关这些患者的具体问题。
