Suppr超能文献

[Transition experience of patients with neuromuscular disease].

作者信息

Greif Valeria, Ugo Florencia, de Castro Pérez M Fernanda, Mozzoni Julieta, Aguerre Verónica, Saldías Milagros, Monges M Soledad

机构信息

Hospital de Pediatría SAMIC "Prof. Dr. Juan P. Garrahan", Buenos Aires, Argentina.

Universidad de Buenos Aires, Ciudad Autónoma de Buenos Aires, Argentina. florencia_ugo@yahoo. com.ar.

出版信息

Arch Argent Pediatr. 2017 Feb 1;115(1):71-75. doi: 10.5546/aap.2017.71.

Abstract

Neuromuscular diseases are mostly genetic disorders, with chronic and progressive course. Affected people are at high risk of developing physical and emotional disabilities. In the last decades, the advance in technology and science has increased chronic pediatric patients survival rate, thus requiring an ongoing assistance in adult hospitals, making the transition a necessity and a challenge. This article reports the clinical practice designed between Hospital Garrahan and Hospital Ramos Mejía for the transition of 27 adolescents during 2015, setting achievements, findings and challenges resulting from this experience.

摘要

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验