Eyrich-Garg Karin M, Moss Shadiya L
College of Public Health, School of Social Work, Temple University, Philadelphia, PA, USA.
Department of Epidemiology, Mailman School of Public Health, Columbia University, New York, NY, USA.
J Urban Health. 2017 Feb;94(1):64-74. doi: 10.1007/s11524-016-0109-y.
Three barriers investigators often encounter when conducting longitudinal work with homeless or other marginalized populations are difficulty tracking participants, high rates of no-shows for follow-up interviews, and high rates of loss to follow-up. Recent research has shown that homeless populations have substantial access to information technologies, including mobile devices and computers. These technologies have the potential both to make longitudinal data collection with homeless populations easier and to minimize some of these methodological challenges. This pilot study's purpose was to test whether individuals who were homeless and sleeping on the streets-the "street homeless"-would answer questions remotely through a web-based data collection system at regular "follow-up" intervals. We attempted to simulate longitudinal data collection in a condensed time period. Participants (N = 21) completed an in-person baseline interview. Each participant was given a remotely reloadable gift card. Subsequently, weekly for 8 weeks, participants were sent an email with a link to a SurveyMonkey questionnaire. Participants were given 48 h to complete each questionnaire. Data were collected about life on the streets, service use, community inclusion, substance use, and high-risk sexual behaviors. Ten dollars was remotely loaded onto each participant's gift card when they completed the questionnaire within the completion window. A substantial number of participants (67% of the total sample and 86% of the adjusted sample) completed at least seven out of the eight follow-up questionnaires. Most questionnaires were completed at public libraries, but several were completed at other types of locations (social service agencies, places of employment, relative/friend/acquaintance's domiciles, or via mobile phone). Although some of the questions were quite sensitive, very few participants skipped any questions. The only variables associated with questionnaire completion were frequency of computer use and education-both positive associations. This pilot study suggests that collecting longitudinal data online may be feasible with a subpopulation of persons experiencing homelessness. We suspect that participant follow-up rates using web-based data collection methods have the potential to exceed follow-up rates using traditional in-person interviews. If this population of persons experiencing street homelessness can be successful with this method of data collection, perhaps other disenfranchised, difficult-to-track, or difficult-to-reach populations could be followed using web-based data collection methods. Local governments are striving to decrease the "digital divide," providing free or greatly discounted wi-fi connectivity as well as mobile computer lab access to low-income geographic areas. These actions, in combination with increased smart phone ownership, may permit vulnerable populations to connect and communicate with investigators.
研究人员在对无家可归者或其他边缘化人群进行纵向研究时,经常遇到的三个障碍是难以追踪参与者、随访访谈的失访率高以及随访期间的失访率高。最近的研究表明,无家可归者能够大量接触信息技术,包括移动设备和电脑。这些技术有可能使对无家可归者进行纵向数据收集变得更容易,并将其中一些方法学挑战降至最低。这项试点研究的目的是测试那些无家可归且露宿街头的人——“街头无家可归者”——是否会在定期的“随访”间隔通过基于网络的数据收集系统远程回答问题。我们试图在一个较短的时间段内模拟纵向数据收集。参与者(N = 21)完成了一次面对面的基线访谈。每个参与者都得到了一张可远程充值的礼品卡。随后,在8周的时间里,每周都会给参与者发送一封电子邮件,其中包含一个指向SurveyMonkey问卷的链接。参与者有48小时来完成每份问卷。收集了关于街头生活、服务使用、社区融入、物质使用和高风险性行为的数据。当参与者在完成窗口内完成问卷时,会有10美元被远程加载到他们的礼品卡上。相当多的参与者(占总样本的67%,调整后样本的86%)完成了八份随访问卷中的至少七份。大多数问卷是在公共图书馆完成的,但也有几份是在其他类型的地点(社会服务机构、工作场所、亲戚/朋友/熟人的住所,或通过手机)完成的。尽管有些问题相当敏感,但很少有参与者跳过任何问题。与问卷完成情况相关的唯一变量是电脑使用频率和教育程度——两者都是正相关。这项试点研究表明,对于一部分无家可归者来说,在线收集纵向数据可能是可行的。我们怀疑使用基于网络的数据收集方法的参与者随访率有可能超过使用传统面对面访谈的随访率。如果这群街头无家可归者能够成功采用这种数据收集方法,那么也许其他被剥夺权利、难以追踪或难以接触的人群也可以使用基于网络的数据收集方法进行随访。地方政府正在努力缩小“数字鸿沟”,为低收入地区提供免费或大幅打折的无线网络连接以及移动计算机实验室访问权限。这些行动,再加上智能手机拥有量的增加,可能会使弱势群体能够与研究人员建立联系并进行沟通。