Heutinck Lotte, Kampen Nadine van, Jansen Merel, Groot Imelda J M de
1 Radboud University Medical Center, Donders Centre for Neuroscience, Department of Rehabilitation, Nijmegen, Netherlands.
J Child Neurol. 2017 Apr;32(5):450-457. doi: 10.1177/0883073816685506. Epub 2017 Jan 23.
This study describes the amount of physical activity and perception of physical activity in boys with Duchenne muscular dystrophy (DMD) compared to healthy boys. A questionnaire described 6 domains of physical activity. Four Duchenne muscular dystrophy subgroups were made: early and late ambulatory, nonambulatory with relative good, or limited arm function. Eighty-four boys with Duchenne muscular dystrophy (15.0 ± 6.4 years) and 198 healthy boys (14.0 ± 4.3 years) participated. Daily activities were more passive for boys with Duchenne muscular dystrophy. Physical activity was less and low demanding compared to healthy boys. It decreased with disease severity ( P < .05), whereas screen time increased ( P < .05). Benefits of physical activity in boys with Duchenne muscular dystrophy were having fun and making friends. Barriers were lack of sport facilities and insufficient health. This study helps to quantify poor engagement in physical activity by boys with Duchenne muscular dystrophy, and demonstrates factors that contribute to it. Suggestions to stimulate physical activity are made.
本研究描述了与健康男孩相比，杜氏肌营养不良症（DMD）男孩的身体活动量及对身体活动的认知情况。一份问卷描述了身体活动的6个领域。将杜氏肌营养不良症患者分为4个亚组：早期和晚期能行走组、手臂功能相对良好或有限的非行走组。84名杜氏肌营养不良症男孩（15.0±6.4岁）和198名健康男孩（14.0±4.3岁）参与了研究。杜氏肌营养不良症男孩的日常活动更具被动性。与健康男孩相比，其身体活动较少且要求较低。身体活动量随疾病严重程度降低（P<.05），而看屏幕时间增加（P<.05）。杜氏肌营养不良症男孩进行身体活动的益处在于获得乐趣和结交朋友。障碍在于缺乏体育设施和健康状况不佳。本研究有助于量化杜氏肌营养不良症男孩身体活动参与度低的情况，并展示了导致这种情况的因素。同时提出了促进身体活动的建议。
