Hornboonherm Promjit, Nanagara Ratanavadee, Kochamat Apinya, Wantha Oratai
Faculty of Nursing, Mahasarakham University, Mahasarakham, Thailand.
Faculty of Medicine, Khon Kaen University, Khon Kaen, Thailand.
Int J Nurs Pract. 2017 Jun;23(3). doi: 10.1111/ijn.12523. Epub 2017 Jan 23.
Scleroderma, particularly systemic sclerosis, is a chronic illness that affects a person's physical, emotional, psychosocial, and spiritual dimensions. To investigate self-care deficits, health behaviours, and trajectory management of Thai people with systemic sclerosis, an exploratory case study method was used through interviews and patient records. Self-care deficit nursing theory and the chronic illness trajectory framework guided the research. Twelve patients with systemic sclerosis were purposively recruited at a hospital clinic in the northeastern region of Thailand. Thai people living with systemic sclerosis developed specific self-care agencies in each of 3 identified trajectory patterns to improve their health and well-being. By applying the theory and framework that guided the research, nurses can promote self-care behaviours and recognize situations along an illness trajectory that require intervention and management. The results extend the understanding of how people live and cope with systemic sclerosis.
硬皮病，尤其是系统性硬化症，是一种影响人的身体、情感、心理社会和精神层面的慢性疾病。为了调查泰国系统性硬化症患者的自我护理缺陷、健康行为和病程管理情况，采用了探索性案例研究方法，通过访谈和患者记录进行研究。自我护理缺陷护理理论和慢性病病程框架指导了该研究。在泰国东北部地区的一家医院诊所，有目的地招募了12名系统性硬化症患者。患有系统性硬化症的泰国人在三种已确定的病程模式中，每种模式都形成了特定的自我护理机制，以改善他们的健康和幸福感。通过应用指导该研究的理论和框架，护士可以促进自我护理行为，并识别疾病病程中需要干预和管理的情况。研究结果扩展了对人们如何生活和应对系统性硬化症的理解。
