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2000年至2010年新加坡居家临终关怀服务趋势的11年研究

An 11-Year Study of Home Hospice Service Trends in Singapore from 2000 to 2010.

作者信息

Ho Benedict John, Akhileswaran Ramaswamy, Pang Grace Su Yin, Koh Gerald Choon Huat

机构信息

1 Saw Swee Hock School of Public Health, National University of Singapore , Singapore, Singapore .

2 Khoo Teck Puat Hospital , Singapore, Singapore .

出版信息

J Palliat Med. 2017 May;20(5):461-472. doi: 10.1089/jpm.2016.0268. Epub 2017 Jan 30.

Abstract

BACKGROUND

Hospice care is most appropriate when a patient no longer benefits from curative treatment and has limited life expectancy. These patients may suffer from any type of life-limiting illness, including end-stage cancer, end-stage heart disease, end-stage renal failure, AIDS, and Alzheimer's disease, among other illnesses. Patients are managed on their pain and symptoms and home hospice care manages these patients in the comfort of their own home, enabling patients to spend their last days with dignity and have a good quality of life.

OBJECTIVE

To describe the home hospice patients at HCA Hospice Care (HHC) Singapore from 2000 to 2010. Description of home care patients in terms of their sociodemographic profile and diagnosis at admission. We reviewed the Electronic Medical Records of patients admitted into HHC from 2000 to 2010.

RESULTS

Patients had multiple admissions into HHC home hospice as identified in the Electronic Medical Records (EMR) between January 1, 2000, and December 31, 2010, but we only selected patient's first admission into HHC home hospice for this analysis. Of the 25,065 patients in the entire samples, 47.3% were males, 65.2% were married, and 84.3% were Chinese. 50.9% of the patients died at home, 75.5% were referred from public hospitals, 53.9% of primary caregivers were children, and the mean age of the patients was 68.0 years. Among all cancer patients admitted into HHC home hospice, lung cancer (23.6%) was the most common principal diagnosis for admission, followed by colorectal (10.5%) and liver cancers (7.7%). Among noncancer patients, renal failure (7.0%) was the most common diagnosis. Among male patients admitted into HHC home hospice, lung cancer (29.6%) was the most common diagnosis, followed by liver cancer (10.8%), colorectal cancer (10.0%), and end-stage renal failure (5.5%). For female patients, lung cancer (16.9%) was the most common diagnosis, followed by breast cancer (15.9%), colorectal cancer (11.0%), and end-stage renal failure (8.7%). Ten-year trends of the sociodemographic profile and diagnosis at admission were further analyzed to determine home hospice services utilization and the needs of the home care patients.

CONCLUSION

With an increasing emphasis to encourage aging and dying in the community and more attention given to building up the home hospice industry's capacity and capability, it is important to understand the profile of the patients who have been utilizing home hospice services. This also helps to plan and develop similar services in other parts of the world.

摘要

背景

当患者不再从根治性治疗中获益且预期寿命有限时,临终关怀最为合适。这些患者可能患有任何类型的危及生命的疾病,包括晚期癌症、晚期心脏病、晚期肾衰竭、艾滋病和阿尔茨海默病等其他疾病。对患者的疼痛和症状进行管理,居家临终关怀在患者自己家中舒适地照料这些患者,使患者能够有尊严地度过最后时光并拥有高质量的生活。

目的

描述2000年至2010年新加坡HCA临终关怀中心(HHC)的居家临终关怀患者情况。从社会人口统计学特征和入院诊断方面描述居家护理患者情况。我们回顾了2000年至2010年入住HHC的患者的电子病历。

结果

在2000年1月1日至2010年12月31日期间的电子病历中显示患者多次入住HHC居家临终关怀中心,但我们仅选择患者首次入住HHC居家临终关怀中心的情况进行此次分析。在整个样本的25065名患者中,47.3%为男性,65.2%已婚,84.3%为华人。50.9%的患者在家中去世,75.5%由公立医院转诊而来,53.9%的主要照料者为子女,患者的平均年龄为68.0岁。在所有入住HHC居家临终关怀中心的癌症患者中,肺癌(23.6%)是最常见的入院主要诊断,其次是结直肠癌(10.5%)和肝癌(7.7%)。在非癌症患者中,肾衰竭(7.0%)是最常见的诊断。在入住HHC居家临终关怀中心的男性患者中,肺癌(29.6%)是最常见的诊断,其次是肝癌(10.8%)、结直肠癌(10.0%)和晚期肾衰竭(5.5%)。对于女性患者,肺癌(16.9%)是最常见的诊断,其次是乳腺癌(15.9%)、结直肠癌(11.0%)和晚期肾衰竭(8.7%)。进一步分析社会人口统计学特征和入院诊断的十年趋势,以确定居家临终关怀服务的利用情况和居家护理患者的需求。

结论

随着越来越强调鼓励在社区养老和离世,并更多地关注增强居家临终关怀行业的能力,了解使用居家临终关怀服务的患者情况非常重要。这也有助于在世界其他地区规划和发展类似服务。

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