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患癌青年如何看待社会支持?一项定性研究。

How do young adults with cancer perceive social support? A qualitative study.

作者信息

Breuer Nora, Sender Annekathrin, Daneck Lisa, Mentschke Lisa, Leuteritz Katja, Friedrich Michael, Nowe Erik, Stöbel-Richter Yve, Geue Kristina

机构信息

a Department of Medical Psychology and Medical Sociology , Universitätsklinikum Leipzig , Leipzig , Germany.

b Faculty of Management and Cultural Sciences , University of Zittau/Görlitz , Görlitz , Germany.

出版信息

J Psychosoc Oncol. 2017 May-Jun;35(3):292-308. doi: 10.1080/07347332.2017.1289290. Epub 2017 Feb 1.

Abstract

The social support of adolescents and young adults (AYA) has been studied very little. 18 interviews were conducted and evaluated with content analysis (inter-rater reliability = 0.87). All of the young adult cancer patients interviewed reported having received social support from at least two people (family, friends, and/or partner). Forms of emotional and instrumental support were more often reported than informational support. 12 participants described having received nonhelpful support, especially in areas of dealing with their situation, limited social participation, and distancing of friends. The participants considered social exchanges with other young adult cancer patients an important source of social support. AYA cancer patient networking should be improved.

摘要

青少年和青年成年人(AYA)的社会支持很少被研究。我们进行了18次访谈,并通过内容分析进行评估(评分者间信度=0.87)。所有接受访谈的青年成年癌症患者都报告称至少从两个人(家人、朋友和/或伴侣)那里获得了社会支持。情感支持和工具性支持的形式比信息支持更常被报告。12名参与者描述了曾得到过无益的支持,尤其是在应对自身状况、社会参与受限以及朋友疏远等方面。参与者认为与其他青年成年癌症患者的社交交流是社会支持的重要来源。应改善AYA癌症患者网络。

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