Zweije-Hofman I L
Centrum Bartiméushage, Doorn.
Tijdschr Kindergeneeskd. 1989 Oct;57(5):177-81.
Experiences with the care for the 37 patients with the juvenile type of neuronal (generalised) ceroid lipofuscinoses in a centre for multihandicapped people are described. Besides abnormalities of the visual and the nervous system attention is given to the psychopathological and cardiovascular symptoms. Remarkable is the great intra- and interindividual diversity in the course of the disease.
本文描述了在一个为多重残疾人士设立的中心，对37例青少年型神经元（全身性）蜡样脂褐质沉积症患者的护理经验。除了视觉和神经系统异常外，还关注了心理病理和心血管症状。值得注意的是，该疾病过程中个体内和个体间存在很大差异。
