Stewart S Evelyn, Hu Yu-Pei, Leung Aldrich, Chan Elaine, Hezel Dianne M, Lin Sarah Yao, Belschner Laura, Walsh Casey, Geller Daniel A, Pauls David L
University of British Columbia (UBC), Vancouver, Canada; British Columbia Children's Hospital, Vancouver; the Provincial Health Services Administration, British Columbia; Massachusetts General Hospital, Boston; and Harvard University, Boston.
Duke University Medical Center, Durham, NC.
J Am Acad Child Adolesc Psychiatry. 2017 Mar;56(3):241-249.e3. doi: 10.1016/j.jaac.2016.12.012. Epub 2016 Dec 27.
Familial aspects of pediatric obsessive-compulsive disorder (OCD), including accommodation and treatment, have received notable and warranted attention. However, individual perspectives of its repercussions on family functioning, including emotional and occupational parental burden, have not been closely examined. The present study details this topic using a large multicenter sample.
Participants included 354 youth affected with OCD and their mothers and fathers ascertained through OCD programs in Boston, Massachusetts (n = 180) and Vancouver, British Columbia (n = 174). The validated OCD Family Functioning Scale and standard OCD measurements were completed. Descriptive, between-site, and cross-perspective comparative analyses were followed by regression model testing to predict family impairment.
Family functioning was negatively affected from youth, mother, and father perspectives. Impairment was reportedly more extensive at the time of worst OCD severity and was greater from maternal versus paternal viewpoints. Most frequently affected family tasks and implicated OCD symptoms included morning and bedtime routines and intrusive thoughts. Emotional repercussions in all members included stress and anxiety, followed by frustration or anger in youth and sadness in parents. Nearly half of mothers and one third of fathers reported daily occupational impairment. Compared with youth self-report, parents perceived fewer social and academic effects on their child. Family accommodation most consistently predicted family impairment, especially from parent perspectives. OCD and compulsion severity, contamination and religious obsessions, and comorbidities also predicted various perspectives of family subdomain impairment.
This study quantitatively details the pervasive burden that pediatric OCD places on families, as reported from complementary relative perspectives. Further attention to this topic is warranted in clinical and research realms.
小儿强迫症(OCD)的家庭因素,包括适应和治疗,已受到显著且合理的关注。然而,其对家庭功能影响的个体观点,包括父母的情感和职业负担,尚未得到仔细研究。本研究使用一个大型多中心样本详细阐述了这一主题。
参与者包括通过马萨诸塞州波士顿(n = 180)和不列颠哥伦比亚省温哥华(n = 174)的强迫症项目确定的354名患有强迫症的青少年及其父母。完成了经过验证的强迫症家庭功能量表和标准强迫症测量。在进行描述性、跨地点和跨视角比较分析之后,进行回归模型测试以预测家庭损害。
从青少年、母亲和父亲的角度来看,家庭功能均受到负面影响。据报道,在强迫症最严重时损害更为广泛,从母亲的角度比从父亲的角度更大。最常受到影响的家庭任务和涉及的强迫症症状包括早晚例行事务和侵入性思维。所有家庭成员的情感影响包括压力和焦虑,其次是青少年的沮丧或愤怒以及父母的悲伤。近一半的母亲和三分之一的父亲报告了日常职业损害。与青少年的自我报告相比,父母认为对孩子的社交和学业影响较少。家庭适应最能持续预测家庭损害,尤其是从父母的角度。强迫症和强迫症状的严重程度、污染和宗教强迫观念以及共病也预测了家庭子领域损害的不同方面。
本研究从互补的相对角度定量详细说明了小儿强迫症给家庭带来的普遍负担。临床和研究领域有必要进一步关注这一主题。