1 School of Public Health and Information Sciences, University of Louisville , Louisville, Kentucky.
2 Department of General Practice, University College Cork , Cork, Ireland .
Diabetes Technol Ther. 2017 Mar;19(3):194-199. doi: 10.1089/dia.2016.0291. Epub 2017 Feb 16.
When patients cannot get answers from health professionals or retain the information given, increasingly they search online for answers, with limited success. Researchers from the United States, Ireland, and the United Kingdom explored this problem for patients with type 2 diabetes mellitus (T2DM). In 2014, patients attending an outpatient clinic (UK) were asked to submit questions about diabetes. Ten questions judged representative of different types of patient concerns were selected by the researchers and submitted to search engines within trusted and vetted websites in the United States, Ireland, and the United Kingdom. Two researchers independently assessed if answers could be found in the three top-ranked documents returned at each website. The 2014 search was repeated in June, 2016, examining the two top-ranked documents returned. One hundred and sixty-four questions were collected from 120 patients during 12 outpatient clinics. Most patients had T2DM (95%). Most questions were about diabetes (N = 155) with the remainder related to clinic operation (N = 9). Of the questions on diabetes, 152 were about T2DM. The 2014 assessment found no adequate answers to the questions in 90 documents (10 questions, 3 websites, 3 top documents). In the 2016 assessment, 1 document out of 60 (10 questions, 3 websites, 2 top documents) provided an adequate answer relating to 1 of the 10 questions. Available online sources of information do not provide answers to questions from patients with diabetes. Our results highlight the urgent need to develop novel ways of providing answers to patient questions about T2DM.
当患者无法从医疗专业人员那里得到答案或无法记住所提供的信息时,他们越来越多地在网上搜索答案,但成功率有限。来自美国、爱尔兰和英国的研究人员针对 2 型糖尿病(T2DM)患者探索了这个问题。2014 年,参加英国一家门诊诊所的患者被要求提交有关糖尿病的问题。研究人员选择了 10 个被认为代表不同类型患者关注点的问题,并将其提交给美国、爱尔兰和英国受信任和审查的网站内的搜索引擎。两名研究人员独立评估在每个网站返回的三个排名最高的文档中是否可以找到答案。2016 年 6 月重复了 2014 年的搜索,检查了每个网站返回的两个排名最高的文档。在 12 次门诊中,从 120 名患者中收集了 164 个问题。大多数患者患有 T2DM(95%)。大多数问题是关于糖尿病(N=155),其余问题与诊所运营有关(N=9)。在关于糖尿病的问题中,152 个问题是关于 T2DM 的。2014 年的评估发现,在 90 个文档中(10 个问题、3 个网站、3 个顶级文档),没有对这些问题的充分回答。在 2016 年的评估中,60 个文档中的 1 个(10 个问题、3 个网站、2 个顶级文档)提供了与 10 个问题之一相关的充分答案。可在线获取的信息来源无法回答糖尿病患者的问题。我们的研究结果突出表明,迫切需要开发新的方法来回答 T2DM 患者的问题。